Rob is definitely beginning to want to do more. He gets outside to water the vegetables at least once a day. He likes to take Mei-li out for walks. We went for a walk together with the dog this evening, which was nice. We never had this kind of 'quality' time together. :)
We attended our first Traumatic Brain Injury Support Group this evening. We were the only ones there, which actually turned out to be fantastic. The Group is run by therapists that Rob will be working with at Day Kimball. The two who were there tonight were the Speech Therapist and the Physical Therapist. So, we got to discuss our situation with them on a personal level. They heard about Rob's accident, too, so they now have a face to put with it. They, too, agree that he's doing tremendously, considering his injury was just over a month ago. It's very encouraging. :)
They're going to make sure we have the resources and referrals we need to benefit our family. There's a physiatrist they're going to have us meet with who comes up from Lawrence & Memorial on Tuesdays. They're also going to refer us to a relationship counselor in the Community Services building at DKH, since we have a unique situation with both of us disabled they feel that we would benefit from being able to discuss personal issues with a professional. They're also going to find some resources for the children to be able to discuss their feelings about our family circumstances.
It worked out really well that we were able to have an hour to talk about what Rob needs specifically. The therapists got to know us and we got to know them a little bit. They showed us where Rob's therapies will be and gave me a secret parking spot. ;)
Tomorrow morning is Rob's Occupational Therapy evaluation. That therapist wasn't there tonight, but we heard about her and it was all positive. I was told that there would be a schedule for his other therapy evaluations and possibly some sessions left for me tomorrow because the lady who schedules will be on vacation until after the holiday weekend and wanted to make sure Rob got scheduled for his therapies.
Unfortunately, my neurologist will be out of the office Thursday, so Rob's appointment had to be put off for another week. We're going to start getting really busy now! I'm sure there will be therapies scheduled next week, plus we start aquatic therapy together next Wednesday, then the neurologist appointment is Thursday afternoon...Pretty much the whole month of September looks likes it's going to be keeping us on our toes. :P
Tuesday, August 31, 2010
Monday, August 30, 2010
Good morning, Trooper Hunt.
It's always fun to be awakened by a knock on the door. Even more so when you peek out the window to see who it is and there's a State Trooper's car out front with the lights going.
Since the trooper handling Rob's accident investigation works midnight to 8 a.m., she stopped by toward the end of her shift this morning to get Rob's statement regarding the accident. His statement is that he suffered a brain injury and now has post-traumatic amnesia, therefore, he doesn't remember anything before the accident or for some time following the accident. Plain and simple.
Trooper Hunt said that the other driver's lab results came back from the hospital and Rob's medical records are trickling in, so she's getting the things she needs in order to wrap up her investigation of the accident. We briefly discussed that intersection and she said she heard about the article in the newspaper and that someone who lives there complained about the light. She took a look at Rob's helmet and said she wanted to make note of what kind it was so she can recommend it. She looked at the side where Rob slid and told us there was blue from his helmet where he slid in the road.
Rob's motorcycle is still at Troop D and Trooper Hunt asked if we saw it. I told her that we asked about it when we went down there to sign the documents so she can obtain the medical records, but the trooper we met with didn't know if the bike was still there. Trooper Hunt said Rob can go down, if he wants to, and ask to see it. She said there are lots of motorcycles back there, but I'm sure we would be able to recognize Rob's. She did say that there's nothing left to the front of the bike. All the dials and 'gadgets' were all crushed on impact with the truck. There's basically a front tire, then the seat and everything back. :S
If we find ourselves in the neighborhood, maybe we'll stop in to see the bike. The attorneys are going to be handling where the bike goes once it's released from investigation at the Troop, since it'll still be evidence in whatever insurance investigations will be ongoing. I think it helps Rob to make this situation 'real' when he sees his helmet, sees the pictures of him in the hospital, the accident scene, etc. One of my very good friends was killed by a drunk driver on her 18th birthday. I was pregnant with Mindy. It was in November, 1995. We graduated high school that June. I got a call from my dad while I was at my grandmother's house for Thanksgiving dinner. My dad was at the football game and heard the news about my friend there. It was so heartbreaking! Everyone in the car was seriously injured. It was a devastating accident and I think the entire town of Putnam was affected. Anyway, at her calling hours I was talking with her brother and asked why her casket was closed. He told me that it was originally open, but her parents felt that she just didn't look like herself and decided to close the casket. My point in mentioning this is that her death was never 'real' to me. I didn't see her in that casket. I was at all the services for her and I know where she's buried, but there's a part of me that always felt like I'm going to run into her at a store one day. I feel like I didn't have closure on the fact that she died. It just couldn't have happened. So, I think it's important for Rob to, hopefully, get to see his motorcycle and to keep reminding him of what happened by talking about what we know and showing him the pictures we have. It will help him to accept his situation.
Aside from that, it looks like Trooper Hunt is going to be finishing her investigation soon. I'm looking forward to finding out what's been concluded. No matter what, I will continue to feel very strongly that change needs to happen at that intersection!
Since the trooper handling Rob's accident investigation works midnight to 8 a.m., she stopped by toward the end of her shift this morning to get Rob's statement regarding the accident. His statement is that he suffered a brain injury and now has post-traumatic amnesia, therefore, he doesn't remember anything before the accident or for some time following the accident. Plain and simple.
Trooper Hunt said that the other driver's lab results came back from the hospital and Rob's medical records are trickling in, so she's getting the things she needs in order to wrap up her investigation of the accident. We briefly discussed that intersection and she said she heard about the article in the newspaper and that someone who lives there complained about the light. She took a look at Rob's helmet and said she wanted to make note of what kind it was so she can recommend it. She looked at the side where Rob slid and told us there was blue from his helmet where he slid in the road.
Rob's motorcycle is still at Troop D and Trooper Hunt asked if we saw it. I told her that we asked about it when we went down there to sign the documents so she can obtain the medical records, but the trooper we met with didn't know if the bike was still there. Trooper Hunt said Rob can go down, if he wants to, and ask to see it. She said there are lots of motorcycles back there, but I'm sure we would be able to recognize Rob's. She did say that there's nothing left to the front of the bike. All the dials and 'gadgets' were all crushed on impact with the truck. There's basically a front tire, then the seat and everything back. :S
If we find ourselves in the neighborhood, maybe we'll stop in to see the bike. The attorneys are going to be handling where the bike goes once it's released from investigation at the Troop, since it'll still be evidence in whatever insurance investigations will be ongoing. I think it helps Rob to make this situation 'real' when he sees his helmet, sees the pictures of him in the hospital, the accident scene, etc. One of my very good friends was killed by a drunk driver on her 18th birthday. I was pregnant with Mindy. It was in November, 1995. We graduated high school that June. I got a call from my dad while I was at my grandmother's house for Thanksgiving dinner. My dad was at the football game and heard the news about my friend there. It was so heartbreaking! Everyone in the car was seriously injured. It was a devastating accident and I think the entire town of Putnam was affected. Anyway, at her calling hours I was talking with her brother and asked why her casket was closed. He told me that it was originally open, but her parents felt that she just didn't look like herself and decided to close the casket. My point in mentioning this is that her death was never 'real' to me. I didn't see her in that casket. I was at all the services for her and I know where she's buried, but there's a part of me that always felt like I'm going to run into her at a store one day. I feel like I didn't have closure on the fact that she died. It just couldn't have happened. So, I think it's important for Rob to, hopefully, get to see his motorcycle and to keep reminding him of what happened by talking about what we know and showing him the pictures we have. It will help him to accept his situation.
Aside from that, it looks like Trooper Hunt is going to be finishing her investigation soon. I'm looking forward to finding out what's been concluded. No matter what, I will continue to feel very strongly that change needs to happen at that intersection!
Friday, August 27, 2010
Eye Can Learn
Since vision is Rob's biggest issue at this point, we've been working together on retraining his eyes to converge. There's an exercise I have him do a few times a day, where he places a pencil just past his point of convergence and gradually brings the pencil toward the tip of his nose, converging to avoid double vision. He's supposed to hold fixation just before there's a break in fusion for 10 seconds, and repeat this exercise 10 times. He tells me he never sees just one pencil, so we'll have to keep working on it.
We've also been going to www.EyeCanLearn.com. Under "Eye Teaming", there are some tasks to help the eyes converge and diverge. The site has some of those magic picture things, which Rob used to be really good at. Right now, though, he sees two boxes, so he's not finding the 3D images contained. Much of the exercises on the site force you to cross your eyes in order to see a third image in the middle of the two on the screen. Once your brain makes the third image, it also creates three-dimensional images. It's pretty neat, actually.
So far, Rob hasn't been successful at the tasks, but I know he'll get better at it the more he tries. With the holiday weekend coming up, it may take a little longer for Rob's glasses to come in. Those are going to be a big help for him, too.
I've been pushing off physical therapy because Rob says it's just not effective when his vision's messing him up. I spoke to the therapist and told her I think it's best if we schedule the occupational therapy first, then speech, then concentrate on physical therapy. We have been running into a bit of trouble with insurance. We're waiting to get the insurance approval in order to schedule Rob's evaluations. Hopefully, we'll be able to schedule OT and ST the same day, then do PT a different day, just for the evaluations. Each eval is an hour.
We did find out that our insurance will not cover aquatic therapy. We're going to do that together on Mondays, Wednesdays, and Fridays from 8 a.m. to 9 a.m. beginning September 8th. We're going to have to pay $101.76 every four weeks, but it'll benefit both of us and we're looking forward to doing that together. :)
We've also been going to www.EyeCanLearn.com. Under "Eye Teaming", there are some tasks to help the eyes converge and diverge. The site has some of those magic picture things, which Rob used to be really good at. Right now, though, he sees two boxes, so he's not finding the 3D images contained. Much of the exercises on the site force you to cross your eyes in order to see a third image in the middle of the two on the screen. Once your brain makes the third image, it also creates three-dimensional images. It's pretty neat, actually.
So far, Rob hasn't been successful at the tasks, but I know he'll get better at it the more he tries. With the holiday weekend coming up, it may take a little longer for Rob's glasses to come in. Those are going to be a big help for him, too.
I've been pushing off physical therapy because Rob says it's just not effective when his vision's messing him up. I spoke to the therapist and told her I think it's best if we schedule the occupational therapy first, then speech, then concentrate on physical therapy. We have been running into a bit of trouble with insurance. We're waiting to get the insurance approval in order to schedule Rob's evaluations. Hopefully, we'll be able to schedule OT and ST the same day, then do PT a different day, just for the evaluations. Each eval is an hour.
We did find out that our insurance will not cover aquatic therapy. We're going to do that together on Mondays, Wednesdays, and Fridays from 8 a.m. to 9 a.m. beginning September 8th. We're going to have to pay $101.76 every four weeks, but it'll benefit both of us and we're looking forward to doing that together. :)
Thursday, August 26, 2010
•check•
Another busy day. Not that I expected it to be different.
Rob saw the orthopedic doctor this morning. The x-ray of his hand shows new bone growth, so it is already healing. There were two fractures at the base of his ring finger and pinky, like the two fingers split apart. The only thing he recommended was extra physical therapy to regain strength in that hand, so that was faxed over to Day Kimball to add to Rob's therapy list. The doctor will see Rob again at the end of September just to make sure everything's going well.
The neurosurgeon at UMASS was pretty much doing a follow-up on the incision where the ICP probe was inserted into Rob's skull. We discussed some of the symptoms Rob's having and he said we're doing all the right things as far as seeking treatment with the right specialists. Rob's cerebellum is doing it's job as far as Rob's balance and coordination. This means that his equilibrium is off definitely because of his vision. That's great news! The neurosurgeon said as far as his involvement in Rob's injury goes, Rob is healed. :P I guess we can check one thing off the list. ;)
Rob saw the orthopedic doctor this morning. The x-ray of his hand shows new bone growth, so it is already healing. There were two fractures at the base of his ring finger and pinky, like the two fingers split apart. The only thing he recommended was extra physical therapy to regain strength in that hand, so that was faxed over to Day Kimball to add to Rob's therapy list. The doctor will see Rob again at the end of September just to make sure everything's going well.
The neurosurgeon at UMASS was pretty much doing a follow-up on the incision where the ICP probe was inserted into Rob's skull. We discussed some of the symptoms Rob's having and he said we're doing all the right things as far as seeking treatment with the right specialists. Rob's cerebellum is doing it's job as far as Rob's balance and coordination. This means that his equilibrium is off definitely because of his vision. That's great news! The neurosurgeon said as far as his involvement in Rob's injury goes, Rob is healed. :P I guess we can check one thing off the list. ;)
Wednesday, August 25, 2010
What a Wednesday!
Didn't I just say yesterday that we weren't going to do anything today? :P
Poor Rob. He sees how tired I'm getting, so he told me I should have left him at Traurig. :( Absolutely not! He needs to get this treatment.
We found out that Rob's left hand IS fractured. :/ I don't know why that hadn't been followed up on at either UMASS or Gaylord. He has an appointment to see an orthopedic doctor tomorrow morning. Hopefully it's healing well and he won't need surgery or anything like that.
We got bad news about Dr. Padula, the vision specialist. He doesn't take our insurance. So, plan B went into action today. Rob picked out a frame that both his lenses will be put into. We did get a discount, but the total cost for both pair of glasses is $356. :S He'll need to see Dr. Boccuzzi in a month to check the progress his eyes are making. We have some exercises to work on at home to help his vision correct itself, too, but the specialist would have benefitted the process greatly. If we wanted to go to Guilford to see him anyway, we would have been required to pay $650 out of pocket just for the consultation appointment. No thanks! That's almost a month of Rob's Short Term Disability pay, for crying out loud.
Tomorrow, too, Rob has a follow-up appointment in the afternoon at UMASS with the neurosurgeon. So, there's no rest for the weary in sight.
I'm disappointed because today's the 16 year anniversary of the day Rob and I met. I wanted to bake a cake, but haven't had a chance. I'm so tired right now, I don't feel like doing any baking. :(
I am really glad that Rob's getting taken care of, though. I was pretty upset to find out that his hand was fractured this whole time. He complained at both UMASS and Gaylord and it never got followed-up on. I have to say, though, that even Dr. Habashy was reluctant to send Rob for an x-ray. I'm glad we insisted on getting it checked and that Dr. Habashy was willing to give us "peace of mind." Good grief!
Today was filled with running around, phone calls, and more running around. Tomorrow looks like it'll be more of the same. I have my own appointment on Friday afternoon at the eye doctor and now would be a terrible time to be told I can't drive anymore. ((praying that doesn't happen)) I don't know what else will end up on Friday's agenda. Mindy's showing Cyclone on Saturday at the Brooklyn Fair's Open Horse Show. I hope lots of people can go to cheer her on, since Rob and I won't be able to go to yet another of her horse shows this season. She's really excited about the show. She's done really well at her last two. She was second best in show for the day at the RIAHA show, and Reserve Champion in her division at the 4-H show. Both were at the beginning of August.
I'm sure next week will get booked up pretty quickly. There's already a couple things on the calendar, including Rob's appointment with my neurologist. We're also going to a Traumatic Brain Injury Support Group at Day Kimball Hospital next week. I need to start eating Wheaties! :P
Poor Rob. He sees how tired I'm getting, so he told me I should have left him at Traurig. :( Absolutely not! He needs to get this treatment.
We found out that Rob's left hand IS fractured. :/ I don't know why that hadn't been followed up on at either UMASS or Gaylord. He has an appointment to see an orthopedic doctor tomorrow morning. Hopefully it's healing well and he won't need surgery or anything like that.
We got bad news about Dr. Padula, the vision specialist. He doesn't take our insurance. So, plan B went into action today. Rob picked out a frame that both his lenses will be put into. We did get a discount, but the total cost for both pair of glasses is $356. :S He'll need to see Dr. Boccuzzi in a month to check the progress his eyes are making. We have some exercises to work on at home to help his vision correct itself, too, but the specialist would have benefitted the process greatly. If we wanted to go to Guilford to see him anyway, we would have been required to pay $650 out of pocket just for the consultation appointment. No thanks! That's almost a month of Rob's Short Term Disability pay, for crying out loud.
Tomorrow, too, Rob has a follow-up appointment in the afternoon at UMASS with the neurosurgeon. So, there's no rest for the weary in sight.
I'm disappointed because today's the 16 year anniversary of the day Rob and I met. I wanted to bake a cake, but haven't had a chance. I'm so tired right now, I don't feel like doing any baking. :(
I am really glad that Rob's getting taken care of, though. I was pretty upset to find out that his hand was fractured this whole time. He complained at both UMASS and Gaylord and it never got followed-up on. I have to say, though, that even Dr. Habashy was reluctant to send Rob for an x-ray. I'm glad we insisted on getting it checked and that Dr. Habashy was willing to give us "peace of mind." Good grief!
Today was filled with running around, phone calls, and more running around. Tomorrow looks like it'll be more of the same. I have my own appointment on Friday afternoon at the eye doctor and now would be a terrible time to be told I can't drive anymore. ((praying that doesn't happen)) I don't know what else will end up on Friday's agenda. Mindy's showing Cyclone on Saturday at the Brooklyn Fair's Open Horse Show. I hope lots of people can go to cheer her on, since Rob and I won't be able to go to yet another of her horse shows this season. She's really excited about the show. She's done really well at her last two. She was second best in show for the day at the RIAHA show, and Reserve Champion in her division at the 4-H show. Both were at the beginning of August.
I'm sure next week will get booked up pretty quickly. There's already a couple things on the calendar, including Rob's appointment with my neurologist. We're also going to a Traumatic Brain Injury Support Group at Day Kimball Hospital next week. I need to start eating Wheaties! :P
Tuesday, August 24, 2010
Getting The Ball Rolling
We had a wicked busy day!
Rob saw the doctor this morning. He felt it best to let the neurologist handle Rob's prescriptions, but did prescribe an antidepressant. He didn't feel Rob needed a referral to an orthopedic specialist for his hand. Like Gaylord, Dr. Habashy told Rob it's sprained, probably from the bike's handlebar. However, he sent Rob for an x-ray to be sure.
We had to bring a copy of the discharge paperwork from Gaylord to Troop D and sign medical releases for Trooper Hunt to obtain Rob's records for her investigation of the accident.
In between dropping of Rob's script and picking up the medication at the pharmacy, Rob had an opthalmalogist appointment. It was extensive and informative, but it's not Rob's 'vision' that's the problem. His double vision is a miscommunication between his eyes and his brain. Like me, he could get prism lenses that would help bring images together. However, as his brain heals he won't need corrective lenses. Since he'd need two separate pair, one for near and the other for distance, we'd be spending another $800 on glasses. The doctor feels it would be best to have Rob treat with a Traumatic Brain Injury Vision Therapy Specialist from Guilford, Dr. Padula. He says Dr. Padula is worth the drive and works wonders. His office is going to call in the referral and make an appointment tomorrow.
I'm so tired! Of course, I'm trying to coordinate two of us having all kinds of doctors to see. My calendar's beginning to look like a nightmare. :S
We should be hearing from Speech, Physical, and Occupational Therapy tomorrow to schedule Rob's evaluations. Things are about to get very hectic!
Tomorrow, though, Rob and I are going to bake a cake and celebrate the 16 year anniversary of the day we met and will be thanking God that we still have each other. :)
Rob saw the doctor this morning. He felt it best to let the neurologist handle Rob's prescriptions, but did prescribe an antidepressant. He didn't feel Rob needed a referral to an orthopedic specialist for his hand. Like Gaylord, Dr. Habashy told Rob it's sprained, probably from the bike's handlebar. However, he sent Rob for an x-ray to be sure.
We had to bring a copy of the discharge paperwork from Gaylord to Troop D and sign medical releases for Trooper Hunt to obtain Rob's records for her investigation of the accident.
In between dropping of Rob's script and picking up the medication at the pharmacy, Rob had an opthalmalogist appointment. It was extensive and informative, but it's not Rob's 'vision' that's the problem. His double vision is a miscommunication between his eyes and his brain. Like me, he could get prism lenses that would help bring images together. However, as his brain heals he won't need corrective lenses. Since he'd need two separate pair, one for near and the other for distance, we'd be spending another $800 on glasses. The doctor feels it would be best to have Rob treat with a Traumatic Brain Injury Vision Therapy Specialist from Guilford, Dr. Padula. He says Dr. Padula is worth the drive and works wonders. His office is going to call in the referral and make an appointment tomorrow.
I'm so tired! Of course, I'm trying to coordinate two of us having all kinds of doctors to see. My calendar's beginning to look like a nightmare. :S
We should be hearing from Speech, Physical, and Occupational Therapy tomorrow to schedule Rob's evaluations. Things are about to get very hectic!
Tomorrow, though, Rob and I are going to bake a cake and celebrate the 16 year anniversary of the day we met and will be thanking God that we still have each other. :)
Monday, August 23, 2010
~ Regarding the Benefit Night ~
Just a note regarding 'Comeau's Cause', which will be held at
7 p.m., Saturday, September 18th at the Music Lady Cafe.
If anyone sold tickets, but hasn't turned the money in yet, please get it turned in as soon as possible. My sister-in-law will greatly appreciate everyone's cooperation with turning in the ticket money in a timely manner. :)If you're interested in purchasing tickets to the benefit, there are several people with tickets. You can contact me and I can give you contact information. My email address is anencephalous1@gmail.com and my cell phone is 860.420.6251.
Sunday, August 22, 2010
Visiting Us
Rob's parents came to visit for a little while over the weekend. Rob felt up to it and said he wanted to see them. It went okay, but there was a point when Rob walked outside to get away for a few minutes, so visiting does get to him a little. I just want to pass that on, especially since Rob's home now. He will be pretty busy with doctor appointments and therapies. All those things will take a lot out of him during the week. I'm not saying no one can stop by, but I would request that we get asked if Rob's up to having company before anyone comes over, and that only one or two people come at a time. He's doing great and I know everyone wants to see him. Please just respect that Rob is still healing and may not feel like 'entertaining' all the time. Everyone's cooperation will assist with continued positive progress. :)
♥ H O M E ♥
Rob needs to see doctors. He needs his vision checked, first and foremost, and hopefully corrected as soon as possible. He's really not going to make much progress while his vision is disturbing him. We discussed everything over the weekend. He didn't feel Traurig was helpful. He's not seeing doctors there, and agrees that he needs medical attention. Together, we decided that he would voluntarily discharge himself from the program at Traurig.
We left around 11 a.m. because we had to drive north to take care of our daughter's horse before heading down to Wallingford. We got to Traurig around 1:30 p.m. Rob took charge and let them know what he thought and told them he wanted to seek treatment at home. They were hesitant, but in the end had to agree that they weren't able to stop him. We packed up his belongings, he signed his discharge paper, and they gave us all his medications.
We made a pit stop at the McDonald's down the road from Gaylord and had lunch, thanks to the friends from the Wallingford Congregation. :) It also gave me a much-needed break from driving. Then, we headed home. The four of us were so happy to be driving home together!
We arrived home a little before 4 p.m., got cozy, and Rob took a little nap on the recliner. Now, he's asking for dinner, so I better see if there's anything to make. No one's really been eating here. :S
It has never felt so good to have Rob lounging in front of the television in the recliner. ♥
We left around 11 a.m. because we had to drive north to take care of our daughter's horse before heading down to Wallingford. We got to Traurig around 1:30 p.m. Rob took charge and let them know what he thought and told them he wanted to seek treatment at home. They were hesitant, but in the end had to agree that they weren't able to stop him. We packed up his belongings, he signed his discharge paper, and they gave us all his medications.
We made a pit stop at the McDonald's down the road from Gaylord and had lunch, thanks to the friends from the Wallingford Congregation. :) It also gave me a much-needed break from driving. Then, we headed home. The four of us were so happy to be driving home together!
We arrived home a little before 4 p.m., got cozy, and Rob took a little nap on the recliner. Now, he's asking for dinner, so I better see if there's anything to make. No one's really been eating here. :S
It has never felt so good to have Rob lounging in front of the television in the recliner. ♥
Saturday, August 21, 2010
Norwich Bulletin
http://www.norwichbulletin.com/communities/northeast/x1024315758/Official-Requested-stoplight-not-needed
I encourage everyone to make some noise with regard to this article. Not one person who knows this intersection would not agree to the fact that it's extremely dangerous and something needs to be done there.
I encourage everyone to make some noise with regard to this article. Not one person who knows this intersection would not agree to the fact that it's extremely dangerous and something needs to be done there.
Friday Night
So far at home this weekend, Rob's doing fantastic! :)
He remembers where everything is and seems really comfortable. He slept well, he's eating well, and he knows when he has to take his medications. (I'm not supposed to prompt him to take them.)
He's got his dog and for her, all is well with the world again. As I type, Rob's relaxing in the recliner and Mei-li's laying on the top of it, right next to his head. :P
We started a Social Security application for him together last night, once we figured out that the Red Sox game was going to be terribly disappointing. Haha! I couldn't get through it, since I have such a hard time, myself, so we have to continue it a little later on. He agreed that it's best to start the process because we can always stop it.
There was a story on the radio yesterday about the intersection where Rob's accident happened, and I guess the Norwich Bulletin has something on it in today's paper. We haven't seen it yet, but we'll look for it in a little while.
We hope everyone has a marvelous day! :) We'll definitely keep you all posted as the weekend progresses.
He remembers where everything is and seems really comfortable. He slept well, he's eating well, and he knows when he has to take his medications. (I'm not supposed to prompt him to take them.)
He's got his dog and for her, all is well with the world again. As I type, Rob's relaxing in the recliner and Mei-li's laying on the top of it, right next to his head. :P
We started a Social Security application for him together last night, once we figured out that the Red Sox game was going to be terribly disappointing. Haha! I couldn't get through it, since I have such a hard time, myself, so we have to continue it a little later on. He agreed that it's best to start the process because we can always stop it.
There was a story on the radio yesterday about the intersection where Rob's accident happened, and I guess the Norwich Bulletin has something on it in today's paper. We haven't seen it yet, but we'll look for it in a little while.
We hope everyone has a marvelous day! :) We'll definitely keep you all posted as the weekend progresses.
Friday, August 20, 2010
The information I was given ~
Much of the explanations I've received from Rob's care Team have been likened to MS. I imagine it's easier for them, and for me, to have it put into a perspective that I can relate to. Not that TBI is too far off from MS. Both are neurological and affect everyone in different ways.
Like me, Rob can have a "good day" followed by a "bad day." Unlike me, Rob's "bad days" will not increase the severity of his injury, which is good.
His Team seemed to be understanding about how devastating the visitation restrictions can feel. What they told me is to renew myself, work on the to-do list I have for our residence, and respect that the visiting restriction is necessary for his Care Team to do their jobs. I was told to explain the weekend visitation restriction in the same manner - that it's in Rob's best interest and an important aspect of his rehabilitation.
I spoke with Trooper Hunt's supervisor at Troop D yesterday regarding the accident investigation. Due to the serious injury Rob sustained, this investigation may not be complete for at least 6 months. Property damage claims, and any other insurance claims, will not be able to be paid until that investigation is final. They apparently need to do full scale reconstructions of the accident scene, and they need to conduct an interview with Rob. No, he won't remember the accident, but it is a requirement on their end to see what, if anything, he can tell them about that night. I think they're trying to catch him, to be honest. It was alluded to that Rob didn't take evasive action to avoid the accident. I think they want to know if he remembers leaving home, and possibly stopping somewhere on his way, which would have caused him to be running late. I'm HOPING our attorney will be able to be present for that interview when it occurs.
Now, one good thing is that "medical issues" are no longer a primary concern for Rob. The emphasis has shifted to rebuilding skills so Rob's able to enjoy the highest possible quality of life. One thing his Team is preparing both of us for, is that Rob may not be completely aware of how his injury will impact his life until he tries to perform familiar tasks. They said he could become very frustrated when he realizes he's not as good at something he used to do well and will need to be provided a lot of support to decrease his frustration and increase his motivation. Rob will need to be praised for good performance to enhance his self-esteem.
I was also told that I should begin to file for SSDI benefits for Rob. :( Even if Rob is able to return to the workforce, they told me it makes more sense for him to consider working part time, rather than full time. Just as with MS, fatigue is going to be a big problem for Rob.
Rob's outcome may not be known for several months, or even years.
There's never going to be a "fix", so I've been told to help counsel our children that, together, and in time, we will accept what we cannot change. As Rob always says, "It is what it is." He always said it to me when I was upset over something MS was taking away from me, and now, we'll all be saying it together.
Life goes on, but the human spirit can move mountains. More so with God's direction, guidance, and backing. "Two are better than one, because they have a good reward for their hard work. For if one of them should fall, the other one can raise his partner up. But how will it be with just the one who falls when there is not another to raise him up? Moreover, if two lie down together, they also will certainly get warm; but how can just one keep warm? And if somebody could overpower one alone, two together could make a stand against him. And a threefold cord cannot quickly be torn in two." (Eccl. 4:9-12)
Like me, Rob can have a "good day" followed by a "bad day." Unlike me, Rob's "bad days" will not increase the severity of his injury, which is good.
His Team seemed to be understanding about how devastating the visitation restrictions can feel. What they told me is to renew myself, work on the to-do list I have for our residence, and respect that the visiting restriction is necessary for his Care Team to do their jobs. I was told to explain the weekend visitation restriction in the same manner - that it's in Rob's best interest and an important aspect of his rehabilitation.
I spoke with Trooper Hunt's supervisor at Troop D yesterday regarding the accident investigation. Due to the serious injury Rob sustained, this investigation may not be complete for at least 6 months. Property damage claims, and any other insurance claims, will not be able to be paid until that investigation is final. They apparently need to do full scale reconstructions of the accident scene, and they need to conduct an interview with Rob. No, he won't remember the accident, but it is a requirement on their end to see what, if anything, he can tell them about that night. I think they're trying to catch him, to be honest. It was alluded to that Rob didn't take evasive action to avoid the accident. I think they want to know if he remembers leaving home, and possibly stopping somewhere on his way, which would have caused him to be running late. I'm HOPING our attorney will be able to be present for that interview when it occurs.
Now, one good thing is that "medical issues" are no longer a primary concern for Rob. The emphasis has shifted to rebuilding skills so Rob's able to enjoy the highest possible quality of life. One thing his Team is preparing both of us for, is that Rob may not be completely aware of how his injury will impact his life until he tries to perform familiar tasks. They said he could become very frustrated when he realizes he's not as good at something he used to do well and will need to be provided a lot of support to decrease his frustration and increase his motivation. Rob will need to be praised for good performance to enhance his self-esteem.
I was also told that I should begin to file for SSDI benefits for Rob. :( Even if Rob is able to return to the workforce, they told me it makes more sense for him to consider working part time, rather than full time. Just as with MS, fatigue is going to be a big problem for Rob.
Rob's outcome may not be known for several months, or even years.
There's never going to be a "fix", so I've been told to help counsel our children that, together, and in time, we will accept what we cannot change. As Rob always says, "It is what it is." He always said it to me when I was upset over something MS was taking away from me, and now, we'll all be saying it together.
Life goes on, but the human spirit can move mountains. More so with God's direction, guidance, and backing. "Two are better than one, because they have a good reward for their hard work. For if one of them should fall, the other one can raise his partner up. But how will it be with just the one who falls when there is not another to raise him up? Moreover, if two lie down together, they also will certainly get warm; but how can just one keep warm? And if somebody could overpower one alone, two together could make a stand against him. And a threefold cord cannot quickly be torn in two." (Eccl. 4:9-12)
Thursday, August 19, 2010
Weekend Visit Home
I had a long conference call this afternoon with Rob's treating Team at Traurig. That was difficult on a cell phone, of which I get no service inside our apartment.
Rob had his evaluations today. On a good note, he is processing his emotions and is in touch with how he is feeling. However, I was told that Rob specifically requested antidepressants, expressing extreme sadness over this situation. :(
I felt awful to hear that.
Our "Team" discussion consisted of drilling me about what I would do in certain situations. They asked how far away the nearest hospital is to our house, 'reminded' me that Rob is supposed to have 24-hour supervision by a qualified adult, and we discussed Rob having a trial visit at home this weekend. His Care Coordinator, Margie, told me that Rob's "expecting" me tomorrow. :P Well, then, I will not let him down! Haha!! :)
Anyway, I have to go through a program tomorrow before I can take Rob home to learn how to give him his medications. As if I don't know how to take/give medications! However, they so bluntly stated that Rob "belongs to Traurig" and, since they are ultimately responsible for him, there's protocol to follow. :/ Also, since Rob is demonstrating signs of depression, I was educated on things to watch for, when to go to the emergency room, and when it would be necessary to call 911.
I was also given specific instructions about visitors and taking Rob out. This is the hard part, because I know everyone's going to want to see him when he's home. They told me that it is VERY IMPORTANT that there are as little 'outside stimulations' as possible. At first, they alluded to wanting me not to tell people that Rob would be home. I don't lie, and I'm not going to be secretive all weekend. I hate to say that we're not going to be able to have visitors, but they were pretty strict on this point. His care team says confusion and overstimulation can be very detremental for Rob, which can increase the severity of his depression and could also have negative neurological affects. I was also told we shouldn't go places.
It's interesting to me that we have to live like hermits at home, but at Traurig they have him running around like a chicken with its head cut off. :S
So, the plan is that Rob will be home this weekend. I was assured that I can call at any time if I'm questioning something or if there's an issue. Also, Rob can be brought back to Traurig if it doesn't work out. I'm just really, really sorry that no one else will be able to visit with him while he's home right now. :( Soon enough!
Rob had his evaluations today. On a good note, he is processing his emotions and is in touch with how he is feeling. However, I was told that Rob specifically requested antidepressants, expressing extreme sadness over this situation. :(
I felt awful to hear that.
Our "Team" discussion consisted of drilling me about what I would do in certain situations. They asked how far away the nearest hospital is to our house, 'reminded' me that Rob is supposed to have 24-hour supervision by a qualified adult, and we discussed Rob having a trial visit at home this weekend. His Care Coordinator, Margie, told me that Rob's "expecting" me tomorrow. :P Well, then, I will not let him down! Haha!! :)
Anyway, I have to go through a program tomorrow before I can take Rob home to learn how to give him his medications. As if I don't know how to take/give medications! However, they so bluntly stated that Rob "belongs to Traurig" and, since they are ultimately responsible for him, there's protocol to follow. :/ Also, since Rob is demonstrating signs of depression, I was educated on things to watch for, when to go to the emergency room, and when it would be necessary to call 911.
I was also given specific instructions about visitors and taking Rob out. This is the hard part, because I know everyone's going to want to see him when he's home. They told me that it is VERY IMPORTANT that there are as little 'outside stimulations' as possible. At first, they alluded to wanting me not to tell people that Rob would be home. I don't lie, and I'm not going to be secretive all weekend. I hate to say that we're not going to be able to have visitors, but they were pretty strict on this point. His care team says confusion and overstimulation can be very detremental for Rob, which can increase the severity of his depression and could also have negative neurological affects. I was also told we shouldn't go places.
It's interesting to me that we have to live like hermits at home, but at Traurig they have him running around like a chicken with its head cut off. :S
So, the plan is that Rob will be home this weekend. I was assured that I can call at any time if I'm questioning something or if there's an issue. Also, Rob can be brought back to Traurig if it doesn't work out. I'm just really, really sorry that no one else will be able to visit with him while he's home right now. :( Soon enough!
Wednesday, August 18, 2010
Traurig House
Rob had two intense therapies this morning, then made the big move down to the Traurig House this afternoon. His discharge instructions include distant supervision at all times, at least one year alcohol free, no driving for at least 3 months with a complete driving re-eval before returning to the road, and no ladders, powertools, lawnmowers, amusement park rides, or contact sports until further notice.
The children and I got Rob all settled into his shared bedroom at Traurig. We got another tour together and then Rob and I had to sit down for a meeting with his new Care Coordinator.
Rob's Care Coordinator's name is Margie. She asked some background questions and stuff like that. Went over the requirements for being at Traurig, i.e. What's expected of Rob; The weekly goals that will be set; Chores; Respect for others; etc. Then, she mentioned that they DISCOURAGE residents from having visitors. :(
I understand the reasoning behind it, but I immediately felt like I was going to pass out.
They are promoting independence and socialization outside of what has been their "comfort zones." Therefore, as residents of Traurig House, it is strongly recommended that friends and family are discouraged from visiting during the week. Rob will have a day full of intense therapies and in the evenings, the residents eat dinner together and have house activites planned for each night of the week, especially Tuesday, when the residents choose some kind of "outing" to go on for, what they call, "community reintegration." However, Rob will be allowed to leave on Friday night and won't be expected to return to Traurig until Sunday evening, to allow time to spend with family and friends, and a "trial run" at home.
When Rob excused himself from this meeting we were having with Margie, she asked me how I felt about being asked not to visit. I felt heartbroken. For the first time since his accident, I'm not going to see Rob or be there to help him, encourage him, support him, or keep him company. I can't WAIT until Friday evening!!
This doesn't mean that I'm excused from having to be at Gaylord. :S They gave me a list of classes and seminars they are requiring me to attend. When I go, I'll be able to stop by Traurig for a quick hello if Rob's not busy, but I have to get through Thursday and most of the day Friday this week without seeing him. All of this is only temporary. I have to keep reminding myself of that. I know what I have to do in order to get him home, and I know what he has to do.
But, I have a feeling Rob's going to want to leave the program. They aren't allowing him to lay down, basically until bedtime. He's not happy about that at all! Every time he tried to lay down, or even recline in the community area recliner, one of the staff was right there to tell Rob he needed to be sitting straight up. :/ They flat out said there's no "alone time" while you're at Traurig. They don't want the residents by themselves somewhere, relaxing. They promote watching television together, sitting outside together, playing games together, going on outings together - being active throughout the entire day and socializing with each other. This is definitely something Rob's not accustomed to. He's always been a napper and he ALWAYS watches t.v. in bed. They don't allow televisions in the bedrooms at all. The reason is to make the residents watch t.v. together in a community area.
Oh, and Rob HATED that they told him he always has to be dressed appropriately - wearing a bathrobe or shirt. He came right out and asked, "Who made up the shirt rule?!?" Haha!
I'll be surprised if they're even able to get Rob out of bed in the morning on Friday. :P
Rob's mailing address has changed. If anyone wants to send him mail, it should be addressed as follows:
Robert Comeau
c/o GFRC - The Traurig House
P.O. Box 6008
Wallingford, CT 06492-6008
Robert Comeau
c/o GFRC - The Traurig House
P.O. Box 6008
Wallingford, CT 06492-6008
I do understand that they want Rob's energy and emphasis to be focused on making progress in his therapies, but this is so difficult. I have a bunch of packets of information about what I need to do in the home, what I have to plan for, watch for, and do if/when. And I know I'll be able to talk to him at night when he's settling into bed for the night and all the activities are through. It just doesn't make it stink any less that I was basically told not to go visit my husband. The look on his face when he heard that didn't make it any easier, either. :(
I am really glad both children were there today, though, and we spent the day together as a family. The Traurig House is the last step in this road toward Rob coming HOME!! :)
Tuesday, August 17, 2010
Whoa!
We found out this morning that Rob's being discharged tomorrow.
I'm so overwhelmed right now. I found out this morning that Social Security won't release my money to me because the judge found me too cognitively impaired. Rob was supposed to handle our finances, but now he can't. I don't have control over anything anymore and it's a pretty crappy place to be.
Rob's supposed to be going to the Traurig House tomorrow. In order for me to be able to continue coming here, I need gas money...I really need a CAR.
I can't believe we've been dealt this terrible hand. I hate that stupid motorcycle. I hate the MonSter. I am so wicked overwhelmed with this extreme loss of control.
On a positive note, Rob's progress has been so extraordinary. I'm glad the consensus is that he no longer needs hospitalization. The doctor couldn't give me accurate information on how long he'll need to be at Traurig, but said the team there will make an assessment. He told me, though, that Rob's doing so well, he thinks it should only be 2 - 4 weeks. :)
I'm so overwhelmed right now. I found out this morning that Social Security won't release my money to me because the judge found me too cognitively impaired. Rob was supposed to handle our finances, but now he can't. I don't have control over anything anymore and it's a pretty crappy place to be.
Rob's supposed to be going to the Traurig House tomorrow. In order for me to be able to continue coming here, I need gas money...I really need a CAR.
I can't believe we've been dealt this terrible hand. I hate that stupid motorcycle. I hate the MonSter. I am so wicked overwhelmed with this extreme loss of control.
On a positive note, Rob's progress has been so extraordinary. I'm glad the consensus is that he no longer needs hospitalization. The doctor couldn't give me accurate information on how long he'll need to be at Traurig, but said the team there will make an assessment. He told me, though, that Rob's doing so well, he thinks it should only be 2 - 4 weeks. :)
Monday, August 16, 2010
Traurig Got Better
A psychologist came and spoke with me and Rob about how things are going, etc. We both discussed our anxieties and received positive information from her, which was very reassuring. :)
She mentioned that the idea of the Traurig House shouldn't be viewed as a permanent situation because it's not an institution. She told Rob that he can leave Traurig at any time if he decides he doesn't like it there. That really made him feel more at ease with the possibility of going there, and helped me not to feel so bad about it, too. :)
She mentioned that the idea of the Traurig House shouldn't be viewed as a permanent situation because it's not an institution. She told Rob that he can leave Traurig at any time if he decides he doesn't like it there. That really made him feel more at ease with the possibility of going there, and helped me not to feel so bad about it, too. :)
The Final Monday?
I'm just as tired as Rob is, if not more. The difference is that he gets to nap. I had a bunch of things to do this morning before journeying to Gaylord. I didn't make it in time to sit in on his trial outpatient cognitive therapy. I don't know how it went from the therapist's perspective, but Rob said it was "interesting." We have another cognitive group therapy together at 1 pm. I'm required to attend it with him each day this week.
If Rob is accepted to Traurig and agrees to go, my training won't be over. They're estimating he would be a resident of Traurig for two months. During that time, they need to train me to handle situations at home, discuss home revisions and reorganization, and may come to our apartment to take a look at things themselves.
Rob's more pro-Traurig than he's been because everyone's speaking so highly of it. He just hates to hear that I have to continue driving 1 1/2 hours each way for another two months.
I'm not fond of that idea, either. :/ However, the goal is to get Rob ready for community reentry the most effective way possible. I just don't know if I'll be able to handle it, or if I'm going to have to insist on someone else getting the training and Rob moving in with someone else upon community reentry. :(
If Rob is accepted to Traurig and agrees to go, my training won't be over. They're estimating he would be a resident of Traurig for two months. During that time, they need to train me to handle situations at home, discuss home revisions and reorganization, and may come to our apartment to take a look at things themselves.
Rob's more pro-Traurig than he's been because everyone's speaking so highly of it. He just hates to hear that I have to continue driving 1 1/2 hours each way for another two months.
I'm not fond of that idea, either. :/ However, the goal is to get Rob ready for community reentry the most effective way possible. I just don't know if I'll be able to handle it, or if I'm going to have to insist on someone else getting the training and Rob moving in with someone else upon community reentry. :(
Sunday, August 15, 2010
Five Nights, Four Days
Rob is counting the seconds until he can go home. He's been told that the hospital is expecting to discharge him on Friday morning.
However, the therapists are trying to encourage discharge to Traurig House, which Rob's not into at all. The difference would be that, at home, Rob would get 3 days of outpatient therapy each week, whereas Traurig House would provide 5 days of therapy.
I feel torn on the choices. And, of course, things are just becoming more and more stressful on the home front. Bills are out of control. The plans we outlined for my disability money are obviously blown to pieces. It was all stuff we really needed to do. :(
We knew we needed a place to live that's all on one floor because of my limitations, but now there are 2 of us who'd benefit from flat living space. Of course, nothing exists.
Our daughter's horse needs a place to live. It would be awesome if he could live where we do, but we definitely wouldn't be able to find an affordable place with horse accommodations in the state of Connecticut. While I am all for getting the heck out of here, our plan to purchase a truck and trailer will be unfulfilled, therefore posing a pretty big problem with relocating Cyclone.
Rob had big plans of doing a lot more work with his pal, Jeremy. He was hoping to have the truck and an additional utility trailer, plus upgrading the size of our storage unit, so that he could really help Jeremy's business soar. I don't want to let that dream of his die because that is definitely work he can still do. It's not clear whether or not he'll be "sharp" enough to do the job he did at Loos.
I'm wondering if Rob's license will be revoked or suspended. I can't imagine him driving, but I really shouldn't be, either. I've had no choice and it's been stressing me out big time. I finished off 2 bottles of my migraine medicine. I ran out. :( I've got lots of meds to pick up from the pharmacy before it closes tonight.
The way my van's been running, I was thinking of looking into the cottage that can be rented here. I'd love to be able to have the kids with me down here for a couple days. Our dog could come, too, which would be awesome. Rob keeps asking for her. I think it would make the last week here a bit more pleasant for everyone.
However, the therapists are trying to encourage discharge to Traurig House, which Rob's not into at all. The difference would be that, at home, Rob would get 3 days of outpatient therapy each week, whereas Traurig House would provide 5 days of therapy.
I feel torn on the choices. And, of course, things are just becoming more and more stressful on the home front. Bills are out of control. The plans we outlined for my disability money are obviously blown to pieces. It was all stuff we really needed to do. :(
We knew we needed a place to live that's all on one floor because of my limitations, but now there are 2 of us who'd benefit from flat living space. Of course, nothing exists.
Our daughter's horse needs a place to live. It would be awesome if he could live where we do, but we definitely wouldn't be able to find an affordable place with horse accommodations in the state of Connecticut. While I am all for getting the heck out of here, our plan to purchase a truck and trailer will be unfulfilled, therefore posing a pretty big problem with relocating Cyclone.
Rob had big plans of doing a lot more work with his pal, Jeremy. He was hoping to have the truck and an additional utility trailer, plus upgrading the size of our storage unit, so that he could really help Jeremy's business soar. I don't want to let that dream of his die because that is definitely work he can still do. It's not clear whether or not he'll be "sharp" enough to do the job he did at Loos.
I'm wondering if Rob's license will be revoked or suspended. I can't imagine him driving, but I really shouldn't be, either. I've had no choice and it's been stressing me out big time. I finished off 2 bottles of my migraine medicine. I ran out. :( I've got lots of meds to pick up from the pharmacy before it closes tonight.
The way my van's been running, I was thinking of looking into the cottage that can be rented here. I'd love to be able to have the kids with me down here for a couple days. Our dog could come, too, which would be awesome. Rob keeps asking for her. I think it would make the last week here a bit more pleasant for everyone.
Saturday, August 14, 2010
Comeau Carrots
Rob and I have spent the day quietly vegging out together. We had Mom Comeau joining the garden party for a little while this afternoon. I think we bored her. :/
I was provided a super uncomfortable chair-bed to try to sleep on. It honestly beats the bench, but marginally.
Rob's been bothered by the fact that I didn't have a pillow or blanket. I told him not to worry about it. I'd ask for stuff the next time the nurse came in to take vitals. Next thing I know, Rob takes off to the nurses' station. He walks back in the room, smiling and carrying two sheets and a blanket. :) He told me the nurse was looking for a pillow. I said, "You're so cute, hun!" He giggled.
I suppose he redeemed himself for being so cross with me yesterday.
I was provided a super uncomfortable chair-bed to try to sleep on. It honestly beats the bench, but marginally.
Rob's been bothered by the fact that I didn't have a pillow or blanket. I told him not to worry about it. I'd ask for stuff the next time the nurse came in to take vitals. Next thing I know, Rob takes off to the nurses' station. He walks back in the room, smiling and carrying two sheets and a blanket. :) He told me the nurse was looking for a pillow. I said, "You're so cute, hun!" He giggled.
I suppose he redeemed himself for being so cross with me yesterday.
It's The Weekend
What a week! Rob is making such fantastic physical progress. He's gaining stamina and his balance is improving tremendously.
Following a vision exam, Rob was given a pair of non-prescription glasses, taped on the lenses in a way that should help his eyes converge and improve the double vision he's experiencing. It's a chore to talk him into wearing them.
Cognitively, Rob's not improving as quickly, but he's doing better. Repetition and constant review is helping. Rob's Speech Therapist gives us worksheets to do together. Sometimes he provides such funny answers - logical to him, but not the answer that's being looked for.
Next week, they're adding a vision group to his therapy schedule. Monday, they want to try him in one of the outpatient therapy groups from the Traurig House to see if he'll be appropriate for that program the following week. Rob is pretty insistent that he wants to be discharged home, rather than discharged to Traurig. His Speech Therapist asked him to keep an open mind. We'll see what happens.
Following a vision exam, Rob was given a pair of non-prescription glasses, taped on the lenses in a way that should help his eyes converge and improve the double vision he's experiencing. It's a chore to talk him into wearing them.
Cognitively, Rob's not improving as quickly, but he's doing better. Repetition and constant review is helping. Rob's Speech Therapist gives us worksheets to do together. Sometimes he provides such funny answers - logical to him, but not the answer that's being looked for.
Next week, they're adding a vision group to his therapy schedule. Monday, they want to try him in one of the outpatient therapy groups from the Traurig House to see if he'll be appropriate for that program the following week. Rob is pretty insistent that he wants to be discharged home, rather than discharged to Traurig. His Speech Therapist asked him to keep an open mind. We'll see what happens.
Thursday, August 12, 2010
It's just weird.
I arrived at Gaylord to find Rob sporting a shiny new ankle alarm. It's actually quite annoying. Anytime Rob leaves or enters the hallway his room's in, the thing goes off. Every time I bring him down for therapy or come back from therapy, it goes off. It stinks that we can't just go for walks and stuff anymore without worrying about a nurse having to punch a code into the hall keypad. Rob's already trying to find a way to cut it off. :P
Anyway, they did an eye exam with Rob this morning because of his double vision complaint. I knew exactly what they were talking about when they said he has lag in his right eye. I have lag in my left. Boy - the two of us are quite the pair right now! As usual, his will improve in time while mine will get worse. The awesome thing about me having these issues is I already go to doctors who specialize in neurology, so Rob can go to my doctors. (It's not "awesome" that there's a need for it, though.)
He did much better on the test than I did. LOL I couldn't see a darn thing! I had to stop trying because it was messing with my head.
So basically, Rob can focus okay at a distance, but his vision becomes double when he tries to focus mid-range and close. They recommended that he refrain from reading and other close-up activities because those things cause him to strain and increase the severity of his headaches.
I might have to try to sneak his cell phone away from him. :P
Anyway, they did an eye exam with Rob this morning because of his double vision complaint. I knew exactly what they were talking about when they said he has lag in his right eye. I have lag in my left. Boy - the two of us are quite the pair right now! As usual, his will improve in time while mine will get worse. The awesome thing about me having these issues is I already go to doctors who specialize in neurology, so Rob can go to my doctors. (It's not "awesome" that there's a need for it, though.)
He did much better on the test than I did. LOL I couldn't see a darn thing! I had to stop trying because it was messing with my head.
So basically, Rob can focus okay at a distance, but his vision becomes double when he tries to focus mid-range and close. They recommended that he refrain from reading and other close-up activities because those things cause him to strain and increase the severity of his headaches.
I might have to try to sneak his cell phone away from him. :P
Wednesday, August 11, 2010
Thank You Doesn't Quite Cut It
I just want to let everyone know how humbled we are by the outpouring of support our family is receiving. Rob and I have been working on Thank You cards and notes, but he has eight 1/2-hour therapy sessions scattered throughout the day and it's taking longer than I'd hoped to get them completed. I felt it was important to go through everything with Rob and have him involved in expressing our family's gratitude, so I don't want to sit at home writing out our notes by myself. I hope everyone understands. :) I don't want to name specific people because I don't want to embarrass anyone or mistakenly forget to mention someone here on the blog, but every note, card, and gift that's been given to our family have made their way to Rob's room at Gaylord Hospital. There's a lovely bulletin board in his room with everyone's notes and cards posted, and all sorts of pictures! The nurses love checking it out. ;)
Loos & Co. has been amazing. Rob's always known that he works for a great company and really took pride in his job. He can describe a piece of wire rope, but he can't tell you what day it is! :P The uniform he was wearing the night of the accident was a tad shredded, but he insisted that I cut the patches off of it and post them to his bulletin board. So, his Loos & Co., Inc. patch and his "Rob" patch are attached right to the top of the board. Sadly, I had to throw the rest of the shirt away. The pants also had nothing left to them and went missing a while ago. Maybe my mother threw them away??? Someone from Loos can let me know what we owe for the ruined uniform.
Anyway, I was completely speechless when I received the collection Loos took up for our family. It was beyond - way beyond - anything I could have even imagined. I told Rob about it a few times and he grins with that little snicker of his and says, "Wow." (Anyone who knows Rob knows the snicker-grin I'm writing of.) As if the collection wasn't enough, we received an amazing fruit basket I want to make mention of. The children and I have been really enjoying the wonderful fresh fruit. I don't know where the peaches and nectarines came from, but they were the juiciest things I've ever had. Quite embarrassingly, I learned my lesson to grab a towel prior to enjoying them after the first one. :P
My beloved Christian family in Putnam and beyond have also been amazing. I have to say that the majority of the cards hanging on the bulletin board are from the friends. The loving-kindness being extended is heartwarming. Knowing that our family is being prayed for in both personal prayers and in the Congregation, and that Rob's progress is truly cared about by all the friends is a wonderful feeling. Rob's receiving well-wishes from Christians all over the world. In the Apostle Paul's letter to the Romans, he writes under divine inspiration to "persevere in prayer" and "follow the course of hospitality." (Ro. 12:12, 13) My Christian brothers and sisters have been following this admonition with a tremendous display of agape love, for which I am eternally grateful. Interestingly enough, the text to consider for today, August 11th, is John 13:34: "Love one another." The Society's comment brings out that in the Christian congregation, which is identified by the heartfelt love that exists among its members, we have numerous opportunities to honor one another. (John 13:35) So often I see the friends come together to cheerfully give of themselves in one way or another. "Keep doing good, and you will have praise from it." (Ro. 13:3) Our family's most sincere Christian love goes right back out to each and every one of you! :)
Our families and friends have been pillars of strength. Beginning with the night of the accident, when I know I wouldn't have been able to get myself to Rob's bedside in UMASS, our families and friends have been 'the icing on the cake.' I really don't know what else to say. If it weren't for friends, family, and spirituality, I'd probably be doing nothing more than wasting away at Rob's bedside 24/7. Rob also comes 'alive' when he gets a visit or gets to talk on the phone with different friends and family members, which is soulfood for him. Really, it's soulfood for all of us! :)
It's completely evident how well-loved Rob is and our family is. Don't know what we'd do without you all. (((hugs)))
Tuesday, August 10, 2010
Heather
One of Rob's nurses is a former Gaylord patient. Her name is Heather.
I don't know how long ago, but Heather wrapped her car around a tree and suffered a brain injury. She is missing a piece of her skull and has a large scar around the left side of her head. She needed to have surgery on her brain.
Heather is such a wealth of information. She speaks as a survivor and relates first hand to what Rob's going through. She's so great at explaining things to me. She compares everything that's happening with Rob to what I deal with having MS. Our medications do similar neurological things and we're both going to be experiencing much of the same symptoms.
It really helps a lot to talk with Heather because she's personable, straight forward, and 'real.' She also makes Rob laugh, which I never tire of seeing. ;)
I don't know how long ago, but Heather wrapped her car around a tree and suffered a brain injury. She is missing a piece of her skull and has a large scar around the left side of her head. She needed to have surgery on her brain.
Heather is such a wealth of information. She speaks as a survivor and relates first hand to what Rob's going through. She's so great at explaining things to me. She compares everything that's happening with Rob to what I deal with having MS. Our medications do similar neurological things and we're both going to be experiencing much of the same symptoms.
It really helps a lot to talk with Heather because she's personable, straight forward, and 'real.' She also makes Rob laugh, which I never tire of seeing. ;)
Monday, August 9, 2010
I'm certified. :)
I have been formally trained and tested, and Rob's doing well enough now, so his Physical Therapist officially certified me to be able to let Rob walk with me. :) No stairs yet, though.
Tomorrow, she's hoping to clear Rob for unassisted walking in his hospital room.
I was also given some pearls today. Instead of giving Rob commands, he needs to feel like he's making the decision to do something. For example, rather than "sit down", Rob should be asked, "Don't you think you should/Would you like to sit down?"
I got paperwork filled out by a doctor here, which I need for Probate. It outlines the severity of his mental incapacity and it scares the heck out of me. :( Especially the statement that Rob's impulsive, has a decreased sense of safety awareness, and is a high fall risk. :S
I am pretty surprised they certified me to assist him with walking. I do have to say, though, that they taught me how to assist him using my stronger side and discussed with both of us how important it is to respect when my body is not physically capable of assisting him.
Tomorrow, she's hoping to clear Rob for unassisted walking in his hospital room.
I was also given some pearls today. Instead of giving Rob commands, he needs to feel like he's making the decision to do something. For example, rather than "sit down", Rob should be asked, "Don't you think you should/Would you like to sit down?"
I got paperwork filled out by a doctor here, which I need for Probate. It outlines the severity of his mental incapacity and it scares the heck out of me. :( Especially the statement that Rob's impulsive, has a decreased sense of safety awareness, and is a high fall risk. :S
I am pretty surprised they certified me to assist him with walking. I do have to say, though, that they taught me how to assist him using my stronger side and discussed with both of us how important it is to respect when my body is not physically capable of assisting him.
F-Bombs Are Dropping
Wow. Rob is pretty annoyed today. :S
Just about everything that comes out of his mouth has the "f word" added in. He seems to be feeling quite a bit of pain today. His right eye is really bothering him. The doctors were in with him this morning and noted that he has double vision going on, which is common following TBI, and made a reference to his Occupational Therapist, Marci, to do some visual work in his OT sessions. I also made sure the doctors were aware of the pain he's been complaining of in his left hand. I haven't been informed of a plan for following up on that.
I made sure he got a kneecap cover this morning. ;)
Rob had a busy morning with therapies. He was too tired to stay awake for lunch. He has a busy afternoon ahead, too. 1:30 OT, 2:00 Speech, and 2:30 PT. He was also given more Speech homework, but I'll be surprised if I can get him to work on it.
Just about everything that comes out of his mouth has the "f word" added in. He seems to be feeling quite a bit of pain today. His right eye is really bothering him. The doctors were in with him this morning and noted that he has double vision going on, which is common following TBI, and made a reference to his Occupational Therapist, Marci, to do some visual work in his OT sessions. I also made sure the doctors were aware of the pain he's been complaining of in his left hand. I haven't been informed of a plan for following up on that.
I made sure he got a kneecap cover this morning. ;)
Rob had a busy morning with therapies. He was too tired to stay awake for lunch. He has a busy afternoon ahead, too. 1:30 OT, 2:00 Speech, and 2:30 PT. He was also given more Speech homework, but I'll be surprised if I can get him to work on it.
Sunday, August 8, 2010
A Kneecap's On Order
Rob called me a little before 6 p.m. Funny how quickly I am able to react when I hear my phone say, "Call from Gaylord Hospital." I had been sleeping when the call came in. I don't even remember getting out of bed to answer it!
He told me he was in jail. He's angry because he ordered a new kneecap, but they won't bring him one. I asked him what he had for supper and he told me it was something metallic. I asked if he finished it all and he said yes, because he had an appetite for destruction. (Has he been listening to music?? :P ) He wanted to know where I was. It breaks my heart.
He wants to be home and I'm really feeling like he needs to be home. He needs to have familiarity. I also think he needs to feel like he's taking care of me. He made a comment to me earlier today, asking me why I'm "playing dumb." He said I'm acting like he doesn't know what he's talking about. I feel so bad. I try to play in to conversations about bed bugs and foul balls, but I've also been told that I should be trying to make him focus and reason. I guess I'm just in a difficult position. :S
I was going to try to stay home tomorrow, but I honestly need the therapy as much as Rob does. It took a lot for me to leave so early today. I only spent five hours at the hospital, which is about half of what I normally spend there with him. I like being with him. We've never spent so much time together! :P I wish we weren't vacationing in a hospital, battling a traumatic brain injury and MS collectively, but that is the lemonade we've gotten from our lemons.
"Love is long-suffering and kind. Love...does not look for its own interests. It bears all things, believes all things, hopes all things, endures all things. Love never fails." (1 Corinthians 13:4-8) That said, if my husband is angry that the nurses aren't bringing him the kneecap he ordered, I will support and comfort him. If he wants to take a walk up and down the hallways of the hospital to find foul balls, or go somewhere that doesn't exist, I will be there to make sure he has appropriate footwear on so he doesn't slip, and will have my hands on his sides to help him keep his balance until he's tired of that and wants to go back to bed. If he wants to think his physical therapy sessions are really for me, I'll be happy to hold his hand and do the exercises with him to the best of my ability.
Rob and I met on August 25, 1994. We exchanged our marriage vows on April 8, 2001. Our wedding song is "Strong, Strong Wind", by Heart. Never have there been more perfect lyrics for a couple!
We walked away before
There were too many storms
We could not get through
But I still kept loving you
Now fate brought you back to me
This time I won't let you leave
I'm holding onto you, forever
I'm never letting go
The time I spent away from you
Was time that made me see
I need to live this life with you
I need you here with me
Now it would take a strong, strong wind
To take me from your arms again
To take me from your side
It would take a strong, strong wind
To pull away this heart of mine
To make us break apart this time
It would take a strong, strong wind
Hearts sometimes lose their way
But they find their way back someday
To the arms they need
And I need you like the air I breathe
The time I spent away from you
Was time lost in the rain
I'm meant to live this life with you
That's something nothing can change
And it would take a strong, strong wind
To take me from your arms again
To take me from your side
It would take a strong, strong wind
To tear away this heart of mine
To make us break apart this time
It would take a strong, strong wind
This time I'm holding on with everything
This time I won't let go for anything
So, tomorrow when I visit with Rob at the hospital, if he wants to complain to the nurses that he hasn't received his new kneecap, I'll be there to back him up. ;) That's my job.
He told me he was in jail. He's angry because he ordered a new kneecap, but they won't bring him one. I asked him what he had for supper and he told me it was something metallic. I asked if he finished it all and he said yes, because he had an appetite for destruction. (Has he been listening to music?? :P ) He wanted to know where I was. It breaks my heart.
He wants to be home and I'm really feeling like he needs to be home. He needs to have familiarity. I also think he needs to feel like he's taking care of me. He made a comment to me earlier today, asking me why I'm "playing dumb." He said I'm acting like he doesn't know what he's talking about. I feel so bad. I try to play in to conversations about bed bugs and foul balls, but I've also been told that I should be trying to make him focus and reason. I guess I'm just in a difficult position. :S
I was going to try to stay home tomorrow, but I honestly need the therapy as much as Rob does. It took a lot for me to leave so early today. I only spent five hours at the hospital, which is about half of what I normally spend there with him. I like being with him. We've never spent so much time together! :P I wish we weren't vacationing in a hospital, battling a traumatic brain injury and MS collectively, but that is the lemonade we've gotten from our lemons.
"Love is long-suffering and kind. Love...does not look for its own interests. It bears all things, believes all things, hopes all things, endures all things. Love never fails." (1 Corinthians 13:4-8) That said, if my husband is angry that the nurses aren't bringing him the kneecap he ordered, I will support and comfort him. If he wants to take a walk up and down the hallways of the hospital to find foul balls, or go somewhere that doesn't exist, I will be there to make sure he has appropriate footwear on so he doesn't slip, and will have my hands on his sides to help him keep his balance until he's tired of that and wants to go back to bed. If he wants to think his physical therapy sessions are really for me, I'll be happy to hold his hand and do the exercises with him to the best of my ability.
Rob and I met on August 25, 1994. We exchanged our marriage vows on April 8, 2001. Our wedding song is "Strong, Strong Wind", by Heart. Never have there been more perfect lyrics for a couple!
We walked away before
There were too many storms
We could not get through
But I still kept loving you
Now fate brought you back to me
This time I won't let you leave
I'm holding onto you, forever
I'm never letting go
The time I spent away from you
Was time that made me see
I need to live this life with you
I need you here with me
Now it would take a strong, strong wind
To take me from your arms again
To take me from your side
It would take a strong, strong wind
To pull away this heart of mine
To make us break apart this time
It would take a strong, strong wind
Hearts sometimes lose their way
But they find their way back someday
To the arms they need
And I need you like the air I breathe
The time I spent away from you
Was time lost in the rain
I'm meant to live this life with you
That's something nothing can change
And it would take a strong, strong wind
To take me from your arms again
To take me from your side
It would take a strong, strong wind
To tear away this heart of mine
To make us break apart this time
It would take a strong, strong wind
This time I'm holding on with everything
This time I won't let go for anything
So, tomorrow when I visit with Rob at the hospital, if he wants to complain to the nurses that he hasn't received his new kneecap, I'll be there to back him up. ;) That's my job.
Dog Day :)
Mei-li and I got to Gaylord just before 9 am. Her daddy was napping, so she gave him her fuzzy wake-up call. ;) Now I know how to get Rob up! :P Let Mei-li go to town licking his face!
Rob likes having "dirty pants" here. He has been calling her the usual nicknames, except for calling her "Frank Zappa" a couple of times. I think she's very therapeutic for him today. They're laying down, taking a nap together right now.
The nurse said Rob's heparin shot should be able to be discontinued soon, since he's getting up and moving around so much now. They started giving him some kind of medicine to assist the connections in his brain and improve his cognition. I forgot what it's called. I have a hard enough time keeping track of my own medications! I'll need to implement a sorting system at home for the Comeau drug store.
Rob likes having "dirty pants" here. He has been calling her the usual nicknames, except for calling her "Frank Zappa" a couple of times. I think she's very therapeutic for him today. They're laying down, taking a nap together right now.
The nurse said Rob's heparin shot should be able to be discontinued soon, since he's getting up and moving around so much now. They started giving him some kind of medicine to assist the connections in his brain and improve his cognition. I forgot what it's called. I have a hard enough time keeping track of my own medications! I'll need to implement a sorting system at home for the Comeau drug store.
Saturday, August 7, 2010
Trooper Hunt
As soon as I walked in the door at home this evening, my phone rang. It was Gaylord, so I panicked. The nurse began the conversation with, "everything's okay," and I thought, "obviously not, or you wouldn't be calling me."
Rob was having some kind of attack of paranoia. He apparently needed to talk to me. The nurse put Rob on the phone and he asked me where I was. He said, "I don't know if I'm going to live through this." I talked to him for a few minutes, assuring him he will live, and that I would be back there as soon as I could. I also reminded him that his fuzzy little best friend would be coming to visit tomorrow, too. He seemed okay, so we hung up.
I felt an immediate sense of guilt. I've been his constant and he was needing me. :( I honestly wanted to head right back to Wallingford, but I also knew my body would not hold up if I did. So, I called Rob back.
The nurse said he was just hanging out in the hallway with everyone. He also told me that when I talked with him. He added that he peed all over his room and the nurse was in there cleaning it up. I don't know how true that was. I didn't talk with a nurse again to ask. Rob wanted to come home. I felt horrible! He seemed to be worried about me. I promised him that everything at home was well and once he seemed satisfied that things were okay, we ended the conversation.
At 11:30 pm, Mei-li started barking with her "something's going on" bark. I was too afraid to get up at first, but I peeked out the bedroom window and saw a State Trooper's car parked in front of my van. I think I said outloud, "Oh no!" :S
It was Trooper Hunt, the investigating officer on Rob's accident. Okay, at least nothing NEW was happening. She asked some questions on Rob's diagnosis and prognosis. She requested the bike's insurance info. She told me the investigation's going to take a while because they want to be sure they have as accurate information as possible. She wanted to know if Rob would be able to give a statement. I explained that he needs to be constantly reminded that he was in a motorcycle accident, so he's unable to give statements. She mentioned that witnesses said Rob was driving quickly and she has NOT determined fault yet. She asked me what time he had to be at work that night. I'm not going to lie to her! The accident happened at 10:55 pm and he had to be in work for 11 pm. So, yeah, I'm sure he wasn't doing the speed limit.
Now, I got into an accident leaving work one day. This lady came flying down the road as I was pulling out of a side road. All the witnesses said she was flying. I never saw her. The accident was determined to be my fault because I was the one pulling onto the road. I don't see what the difference in Rob's case would be. Speeding or not.
It's 12:30 am now. I haven't gotten any calls from the hospital, so hopefully Rob's doing all right. :)
Rob was having some kind of attack of paranoia. He apparently needed to talk to me. The nurse put Rob on the phone and he asked me where I was. He said, "I don't know if I'm going to live through this." I talked to him for a few minutes, assuring him he will live, and that I would be back there as soon as I could. I also reminded him that his fuzzy little best friend would be coming to visit tomorrow, too. He seemed okay, so we hung up.
I felt an immediate sense of guilt. I've been his constant and he was needing me. :( I honestly wanted to head right back to Wallingford, but I also knew my body would not hold up if I did. So, I called Rob back.
The nurse said he was just hanging out in the hallway with everyone. He also told me that when I talked with him. He added that he peed all over his room and the nurse was in there cleaning it up. I don't know how true that was. I didn't talk with a nurse again to ask. Rob wanted to come home. I felt horrible! He seemed to be worried about me. I promised him that everything at home was well and once he seemed satisfied that things were okay, we ended the conversation.
At 11:30 pm, Mei-li started barking with her "something's going on" bark. I was too afraid to get up at first, but I peeked out the bedroom window and saw a State Trooper's car parked in front of my van. I think I said outloud, "Oh no!" :S
It was Trooper Hunt, the investigating officer on Rob's accident. Okay, at least nothing NEW was happening. She asked some questions on Rob's diagnosis and prognosis. She requested the bike's insurance info. She told me the investigation's going to take a while because they want to be sure they have as accurate information as possible. She wanted to know if Rob would be able to give a statement. I explained that he needs to be constantly reminded that he was in a motorcycle accident, so he's unable to give statements. She mentioned that witnesses said Rob was driving quickly and she has NOT determined fault yet. She asked me what time he had to be at work that night. I'm not going to lie to her! The accident happened at 10:55 pm and he had to be in work for 11 pm. So, yeah, I'm sure he wasn't doing the speed limit.
Now, I got into an accident leaving work one day. This lady came flying down the road as I was pulling out of a side road. All the witnesses said she was flying. I never saw her. The accident was determined to be my fault because I was the one pulling onto the road. I don't see what the difference in Rob's case would be. Speeding or not.
It's 12:30 am now. I haven't gotten any calls from the hospital, so hopefully Rob's doing all right. :)
Overstimulation
A discussion came up regarding the care that Rob needs in order to heal. I need to reiterate some information I was told a while ago.
Rob has to avoid being overstimulated. This means that he can't be overwhelmed with crowds and should really only have 2 or 3 visitors at a time. I know this can be hard to stick to when people are carpooling to visit, or everyone just happens to show up at or around the same time. Perhaps it would be best if I try to keep a visitor schedule. If you're planning to come to Gaylord to see Rob, try to let me know in advance so that I can do my best to limit the number of people coming at the same time. I can be texted (8604206251) or emailed (anencephalous1@gmail.com).
Also, it's important to speak slowly when talking with Rob. He gets frustrated trying to process a lot of information all at once. Things need to be simple and sometimes need to be rephrased.
Just saying this stuff again because it was brought up again to me this morning. ;)
Rob has to avoid being overstimulated. This means that he can't be overwhelmed with crowds and should really only have 2 or 3 visitors at a time. I know this can be hard to stick to when people are carpooling to visit, or everyone just happens to show up at or around the same time. Perhaps it would be best if I try to keep a visitor schedule. If you're planning to come to Gaylord to see Rob, try to let me know in advance so that I can do my best to limit the number of people coming at the same time. I can be texted (8604206251) or emailed (anencephalous1@gmail.com).
Also, it's important to speak slowly when talking with Rob. He gets frustrated trying to process a lot of information all at once. Things need to be simple and sometimes need to be rephrased.
Just saying this stuff again because it was brought up again to me this morning. ;)
Sleep Over Party
I will use the term, "sleep," loosely. :S
The kids were both staying somewhere for the night - including one of the four-legged kids, so I thought I'd give myself a break from driving and spend the night here with my hubby.
We got into our Red Sox jammies and settled in to watch the Red Sox - Yankees game. We had a snack together (a couple Peppermint Patties) and had a cheering battle with the neighbors, who are Yankees fans. :P
Rob lost interest pretty quickly and kept getting up, wanting to do something, but didn't know what. The nurse gave him a sleeping pill. That didn't work.
Meanwhile, I might add, they were trying to locate something for me to sleep on. Apparently, all their cots are broken and no one could find the large fold-out chair that supposedly exists at Gaylord. I ended up having to 'sleep' on the window bench in Rob's room.
Rob isn't kidding when he tells me in the mornings that he hadn't slept well the night before. He's so funny, though, because I had to pee around midnight and he called the nurse in to help me. :P
Anyway, he was constantly getting out of bed. They buckled him in, so he unbuckled himself. He couldn't care less about the bed alarm! I kept jumping up to intercept him. He asked me once why I kept getting up every time he did. The nurse decided to give him a second sleeping pill. We also moved his wheelchair out of the room, hoping he'd forget that he had an option for getting around.
I probably shouldn't have taken my nighttime meds because my body was trying to shut down, but I couldn't get any sleep. I think I snuck a couple hours in, but gave up at 7 am and just took my daytime meds. Of course, Rob's sleeping like a baby now! :S
I am having trouble using my left hand today. Red Sox won, by the way. ;)
The kids were both staying somewhere for the night - including one of the four-legged kids, so I thought I'd give myself a break from driving and spend the night here with my hubby.
We got into our Red Sox jammies and settled in to watch the Red Sox - Yankees game. We had a snack together (a couple Peppermint Patties) and had a cheering battle with the neighbors, who are Yankees fans. :P
Rob lost interest pretty quickly and kept getting up, wanting to do something, but didn't know what. The nurse gave him a sleeping pill. That didn't work.
Meanwhile, I might add, they were trying to locate something for me to sleep on. Apparently, all their cots are broken and no one could find the large fold-out chair that supposedly exists at Gaylord. I ended up having to 'sleep' on the window bench in Rob's room.
Rob isn't kidding when he tells me in the mornings that he hadn't slept well the night before. He's so funny, though, because I had to pee around midnight and he called the nurse in to help me. :P
Anyway, he was constantly getting out of bed. They buckled him in, so he unbuckled himself. He couldn't care less about the bed alarm! I kept jumping up to intercept him. He asked me once why I kept getting up every time he did. The nurse decided to give him a second sleeping pill. We also moved his wheelchair out of the room, hoping he'd forget that he had an option for getting around.
I probably shouldn't have taken my nighttime meds because my body was trying to shut down, but I couldn't get any sleep. I think I snuck a couple hours in, but gave up at 7 am and just took my daytime meds. Of course, Rob's sleeping like a baby now! :S
I am having trouble using my left hand today. Red Sox won, by the way. ;)
Friday, August 6, 2010
PT
Okay, PT was cute this morning. :) Rob was asked to do some walking practice. He reached his hand out to me so we could hold hands and do it together. I don't know if he was thinking I need the therapy more than he does, but it was cute to hold hands and do his PT together this morning.
How do I have time to post, you might ask? Well, there's a half hour break until his next PT session. I figured we'd hang out in the cafeteria and have a Gatorade. Rob took a couple sips, then fell asleep in his wheelchair. Poor Rob!
Wonder how they're going to get him motivated to do the NuStep machine in a few minutes? ;)
How do I have time to post, you might ask? Well, there's a half hour break until his next PT session. I figured we'd hang out in the cafeteria and have a Gatorade. Rob took a couple sips, then fell asleep in his wheelchair. Poor Rob!
Wonder how they're going to get him motivated to do the NuStep machine in a few minutes? ;)
Friday morning.
I arrived at Gaylord at 8 am. Rob was sitting in his wheelchair out in the hallway and had just finished breakfast. I asked him what he was doing, and he said, "Waiting for you." Awww...<3 he was waiting for me! :)
He began to tell the nurses that I needed a bunch of stuff. I think they were glad I was here to keep him occupied. :P
Rob learned a new trick this morning. He figured out that if he unclips himself from his wheelchair alarm, it won't go off if he gets out of it. Oh boy! There's absolutely no restraining him now. :S
I brought the ripe cherry tomatoes from our garden. We sat together and ate a few. Then, Rob unclipped himself and got into bed (laying with his head at the footboard) and fell asleep. It's only 9 o'clock! :P He hasn't even had any therapies yet - how rough could his morning have been? Haha! :)
He began to tell the nurses that I needed a bunch of stuff. I think they were glad I was here to keep him occupied. :P
Rob learned a new trick this morning. He figured out that if he unclips himself from his wheelchair alarm, it won't go off if he gets out of it. Oh boy! There's absolutely no restraining him now. :S
I brought the ripe cherry tomatoes from our garden. We sat together and ate a few. Then, Rob unclipped himself and got into bed (laying with his head at the footboard) and fell asleep. It's only 9 o'clock! :P He hasn't even had any therapies yet - how rough could his morning have been? Haha! :)
Thursday, August 5, 2010
356
I haven't been around too much for Rob's suppertime. Joel and I did stay at Gaylord pretty late this evening, though. After supper was a real treat! :S
There was no keeping Rob contained whatsoever. He figured out how to get himself out of the bed restraint and insisted that he was going to get up. He was saying stuff about something having a 300-lb break test, gasoline being poured all over his motorcycle, something needed a 356, and I needed to check the calendar to get some kind of information about something. The nurses were becoming afraid that I was in danger of getting hurt because Rob could not be controlled. Not that he was enraged, he just insisted on walking around and was saying all kinds of things that didn't make any sense.
At one point, the nurse asked Rob what he needed. He pointed to me and said, "I need to assist her." The nurse told him, "No. She's here to assist you." I felt bad because I knew he wasn't off the wall on that comment.
Rob kept repeating "356." I have no clue what that's about. He even said it to Joel.
Another time, he told me he was going to the livingroom and when I said there was no livingroom there, giving him the option to either sit on the bench, the lounge chair, his wheelchair, or the bed, he angrily questioned, "Oh yeah?!?" :S
The nurses were trying to get me to get him into his wheelchair and take him for a walk in hopes of calming him down a bit. Every time he got into his wheelchair, though, he got right back out of it. I felt horrible, but I said that I wasn't comfortable being responsible for him if I took him out of his room by myself. :( I'm not afraid of him or anything like that. I just don't want him to overpower me and end up hurting himself.
Rob is just so extremely confused. The doctor's diagnosis of "severe cognitive impairment" is an understatement. It is so true that physically, Rob's doing well. He's getting around better, although he's still quite unsteady and needs to continue to improve his balance. He feeds himself, but needs to have someone to sort-of oversee things. I let him do what he wants with his food - like pour soup all over his entree or mix pudding into his mashed potatoes - because I figure it's all going to the same place and as long as he's eating, he's fine. I have to help him when he begins to push everything off the edge of the plate or tries to use a fork to drink his juice. There are just so many concepts he's not getting right now. He still can not answer what month it is, how old he is (he was 16 today and we've been married 26 years), where he is, why he's hospitalized, etc. His therapists are really trying to get him to look to his Memory Book for the answers to these questions, but he doesn't even understand that he needs to do that. It is so, so hard to see him like this. :(
For the most part, you can have a conversation with him. It may end up going astray, like going on a tangent about 356, but you can usually bring him back and continue talking about something. I guess the only way to know that there's something "wrong" is to spend the time with him during his therapies and be with him the way I am throughout the day. At the end of the day when I head home, I'm exhausted mentally. I can leave now. What's it going to be like when he's home? Not that I don't want him to be home! I absolutely want him to be home. I can't wait! I'm just a nervous wreck about it. Sort of like bringing home your first baby. It's fantastic...but WHAT DO I DO NOW? :P
There was no keeping Rob contained whatsoever. He figured out how to get himself out of the bed restraint and insisted that he was going to get up. He was saying stuff about something having a 300-lb break test, gasoline being poured all over his motorcycle, something needed a 356, and I needed to check the calendar to get some kind of information about something. The nurses were becoming afraid that I was in danger of getting hurt because Rob could not be controlled. Not that he was enraged, he just insisted on walking around and was saying all kinds of things that didn't make any sense.
At one point, the nurse asked Rob what he needed. He pointed to me and said, "I need to assist her." The nurse told him, "No. She's here to assist you." I felt bad because I knew he wasn't off the wall on that comment.
Rob kept repeating "356." I have no clue what that's about. He even said it to Joel.
Another time, he told me he was going to the livingroom and when I said there was no livingroom there, giving him the option to either sit on the bench, the lounge chair, his wheelchair, or the bed, he angrily questioned, "Oh yeah?!?" :S
The nurses were trying to get me to get him into his wheelchair and take him for a walk in hopes of calming him down a bit. Every time he got into his wheelchair, though, he got right back out of it. I felt horrible, but I said that I wasn't comfortable being responsible for him if I took him out of his room by myself. :( I'm not afraid of him or anything like that. I just don't want him to overpower me and end up hurting himself.
Rob is just so extremely confused. The doctor's diagnosis of "severe cognitive impairment" is an understatement. It is so true that physically, Rob's doing well. He's getting around better, although he's still quite unsteady and needs to continue to improve his balance. He feeds himself, but needs to have someone to sort-of oversee things. I let him do what he wants with his food - like pour soup all over his entree or mix pudding into his mashed potatoes - because I figure it's all going to the same place and as long as he's eating, he's fine. I have to help him when he begins to push everything off the edge of the plate or tries to use a fork to drink his juice. There are just so many concepts he's not getting right now. He still can not answer what month it is, how old he is (he was 16 today and we've been married 26 years), where he is, why he's hospitalized, etc. His therapists are really trying to get him to look to his Memory Book for the answers to these questions, but he doesn't even understand that he needs to do that. It is so, so hard to see him like this. :(
For the most part, you can have a conversation with him. It may end up going astray, like going on a tangent about 356, but you can usually bring him back and continue talking about something. I guess the only way to know that there's something "wrong" is to spend the time with him during his therapies and be with him the way I am throughout the day. At the end of the day when I head home, I'm exhausted mentally. I can leave now. What's it going to be like when he's home? Not that I don't want him to be home! I absolutely want him to be home. I can't wait! I'm just a nervous wreck about it. Sort of like bringing home your first baby. It's fantastic...but WHAT DO I DO NOW? :P
Guy Smiley
Rob had a busy afternoon! Joel and I were with him just in time to eat lunch together and watch Rob nap. ;) His afternoon OT was scheduled for 1:30, and just as I was getting Rob ready to head to therapy, his supervisor and his wife arrived for a visit. Rob lit right up! It was the first time I'd seen Rob smile in two weeks! :)
OT went well. Everyone was excited to see Rob up and walking around. He was practicing how to make an egg, though they didn't really cook one. He let me know that when I asked if he cooked an egg. His reply was, "No. I took a cold egg and put it into an empty bowl!" :P
Just before Speech Therapy, Rob's brother and sister joined the group. Rob was so happy to have everyone visiting him.
Once ST was finished, all of Rob's company was able to join him in the gymnasium for his final Physical Therapy of the day. His therapist commented on how happy Rob was. She even made note of it in his Memory Book. :) Rob was tired, but he pushed through and it was awesome to see.
His therapists are beginning to formally train me to assist Rob, which is both good and scary at the same time.
Shortly after returning to Rob's room, everyone left, but me and Joel. There was an instant change in Rob's attitude. He was tired and had a headache, though. The nurses wanted him to stay awake until supper. I knew he wasn't going to make it.
We called his mom and dad's house so he could talk to them for a few minutes. Then, there was no stopping the nap.
His supper's been sitting here for about an hour and a half. I want them to save it for him, but they can't much longer because of food safety. The nurse is trying to wake him up to take his vitals, but that's not happening, either.
Rob had a great day today. Maybe he's dreaming about it? ;)
OT went well. Everyone was excited to see Rob up and walking around. He was practicing how to make an egg, though they didn't really cook one. He let me know that when I asked if he cooked an egg. His reply was, "No. I took a cold egg and put it into an empty bowl!" :P
Just before Speech Therapy, Rob's brother and sister joined the group. Rob was so happy to have everyone visiting him.
Once ST was finished, all of Rob's company was able to join him in the gymnasium for his final Physical Therapy of the day. His therapist commented on how happy Rob was. She even made note of it in his Memory Book. :) Rob was tired, but he pushed through and it was awesome to see.
His therapists are beginning to formally train me to assist Rob, which is both good and scary at the same time.
Shortly after returning to Rob's room, everyone left, but me and Joel. There was an instant change in Rob's attitude. He was tired and had a headache, though. The nurses wanted him to stay awake until supper. I knew he wasn't going to make it.
We called his mom and dad's house so he could talk to them for a few minutes. Then, there was no stopping the nap.
His supper's been sitting here for about an hour and a half. I want them to save it for him, but they can't much longer because of food safety. The nurse is trying to wake him up to take his vitals, but that's not happening, either.
Rob had a great day today. Maybe he's dreaming about it? ;)
Two Weeks
These last two weeks have felt like an eternity. We need to move closer to Wallingford. A place that's all one floor, or at least has a bedroom and bathroom on the first floor, and has room for our horse. Anything like that available nearby?
Rob's tentative discharge from Gaylord is August 20th. They're trying to get approval for him to be discharged to the Taurig House, right here at Gaylord.
The Taurig House is the only transitional living center in Connecticut for people with acquired brain injury. It's a second step after inpatient rehabilitation specific to people who aren't quite ready to go home after discharge because of lingering issues. The typical stay there is about two months depending on progress and goals. There are only 8 beds, though, and we're not sure Rob's insurance will cover the program.
If Rob is accepted to continue his care at the Taurig House, he would be allowed to go home on weekends. He'd be able to leave after therapies Friday evenings and wouldn't be required to return until Sunday evening, whether he left for the whole weekend, a day out, or whatever.
Right now, we have 15 days to go at Gaylord.
Rob's tentative discharge from Gaylord is August 20th. They're trying to get approval for him to be discharged to the Taurig House, right here at Gaylord.
The Taurig House is the only transitional living center in Connecticut for people with acquired brain injury. It's a second step after inpatient rehabilitation specific to people who aren't quite ready to go home after discharge because of lingering issues. The typical stay there is about two months depending on progress and goals. There are only 8 beds, though, and we're not sure Rob's insurance will cover the program.
If Rob is accepted to continue his care at the Taurig House, he would be allowed to go home on weekends. He'd be able to leave after therapies Friday evenings and wouldn't be required to return until Sunday evening, whether he left for the whole weekend, a day out, or whatever.
Right now, we have 15 days to go at Gaylord.
Wednesday, August 4, 2010
Ugh...
Rob is constantly aggravated with me. :( I was rearranging his bulletin board. He was upset that I was breaking the hospital's rules. I was bringing him down to PT. He yelled at me that I didn't know what I was doing. His Speech Therapist gave me instructions on keeping his Memory Book log, etc. He threw it at me and said, "This is f-ing stupid!" :( He yells at me because there's an alarm on his wheelchair, because his food's too hot, because the nurses come in his room, etc., etc. I kissed the top of his head and told him I love him as we were heading down to the gymnasium and he said, "Stop pretending." :( That made me so sad.
I received the paperwork back that Loos needs. It's difficult to see his condition in writing. "Traumatic Brain Injury, severe cognitive compromise, post traumatic amnesia and physical impairment. Probable duration of condition: Unknown - anticipate several months." All I can say is :( .
I cried while driving here this morning. Elton John's, "I Guess That's Why They Call It The Blues" was on the radio. I started reflecting on how life changes in the blink of an eye. All of a sudden, nothing's right. Nothing's normal. We've had so many difficult times and we never get a break. It's always struggle, worry, and struggle some more. Rob refused to even entertain the idea of a family vacation. "We're never going to have the money," he'd say. Me, I felt it important to the happiness of our family to just have fun together. We're always going to struggle. A vacation's not going to change that. The bills will still be there. The car's still going to be falling apart. Let's just forget about that stuff for a few days and enjoy each other's company. Give the kids some happy childhood memories.
We haven't had our vacation. Rob's still alive, thank goodness, but he's not "Rob" anymore. :( He's not smiling, laughing, or playfully teasing. His Speech Therapist even asked me if he ever smiled before his accident. He's very serious now.
I don't think we're going to get our fun family vacation. I expected as much, though not in this capacity.
What the heck am I going to do? Rob probably won't ever be able to function at work again. Neither one of us can navigate stairs well. At the moment we have no income. I'm a nervous wreck about insurance. My van's going to break down on me during this commute one of these days. I have my own impairments. :(
Ugh...
I received the paperwork back that Loos needs. It's difficult to see his condition in writing. "Traumatic Brain Injury, severe cognitive compromise, post traumatic amnesia and physical impairment. Probable duration of condition: Unknown - anticipate several months." All I can say is :( .
I cried while driving here this morning. Elton John's, "I Guess That's Why They Call It The Blues" was on the radio. I started reflecting on how life changes in the blink of an eye. All of a sudden, nothing's right. Nothing's normal. We've had so many difficult times and we never get a break. It's always struggle, worry, and struggle some more. Rob refused to even entertain the idea of a family vacation. "We're never going to have the money," he'd say. Me, I felt it important to the happiness of our family to just have fun together. We're always going to struggle. A vacation's not going to change that. The bills will still be there. The car's still going to be falling apart. Let's just forget about that stuff for a few days and enjoy each other's company. Give the kids some happy childhood memories.
We haven't had our vacation. Rob's still alive, thank goodness, but he's not "Rob" anymore. :( He's not smiling, laughing, or playfully teasing. His Speech Therapist even asked me if he ever smiled before his accident. He's very serious now.
I don't think we're going to get our fun family vacation. I expected as much, though not in this capacity.
What the heck am I going to do? Rob probably won't ever be able to function at work again. Neither one of us can navigate stairs well. At the moment we have no income. I'm a nervous wreck about insurance. My van's going to break down on me during this commute one of these days. I have my own impairments. :(
Ugh...
Speech Therapy
I was too tired to post last night. :(
The first Speech Therapy session I was able to attend was yesterday afternoon at 3. Rob's Speech Therapist's name is Kris.
Rob's session began with asking him to answer the usual questions: Do you know where you are? Do you know why you're in the hospital? What's the date today? He still can't answer those questions. Kris wrote the answers down and explained to Rob that he can look at the paper to find the answers.
She then moved on to asking him about his day. She looked to me to provide the accurate information and sometimes had to give Rob a choice between two possible answers. Kris explained to me that it's important to talk to Rob clearly and simply. Sometimes, instead of leaving a question open-ended, we should provide two possible answers for him to choose from. Also, we might have to have Rob repeat things to make sure he understands, and rephrasing may be helpful for him. Some examples she said were: Rob, what did you have for lunch? Ham or a hamburger? (He had ham.) Do cats have feathers? (Rob said yes.) Do you know what feathers are, Rob? (He said yes.) What kind of animal has feathers? (He said birds.) Yes, birds have feathers. Do cats have feathers? (Rob said no.) Right. Cats do not have feathers. They have fur.
Kris had Rob do some writing, too. He's fixated on numbers! She asked me what was with numbers. I told her that he has to write a lot of numbers at work. :P
She did some questions with him and reviewed the original questions, too, trying to get him to look to his paper to find the answers. He did okay with that. He's still not completely understanding everything, but she told me that he didn't do well at all previously and has made an improvement, which is excellent.
Today, I was told he'll be provided a Memory Book. Kris is going to put together a book of answers for Rob to go to when he gets asked usual questions. She told him that it's better to have to look up the answer and get it right, than to take a guess and be wrong. Again, this is all training for me, too. Instead of just jumping in to help him with the answer, I need to patiently assist him to find the answer from another source. ;)
So, for any who are planning to visit, just keep in mind that overstimulation gets Rob really agitated. Things need to be simple. A tell-tale sign that he's getting frustrated is that he starts to bounce his leg. Either that, or he'll swear at you. :P He swore at his OT person yesterday when he got frustrated with Tic-Tac-Toe. You can't say I didn't warn you! ;)
The first Speech Therapy session I was able to attend was yesterday afternoon at 3. Rob's Speech Therapist's name is Kris.
Rob's session began with asking him to answer the usual questions: Do you know where you are? Do you know why you're in the hospital? What's the date today? He still can't answer those questions. Kris wrote the answers down and explained to Rob that he can look at the paper to find the answers.
She then moved on to asking him about his day. She looked to me to provide the accurate information and sometimes had to give Rob a choice between two possible answers. Kris explained to me that it's important to talk to Rob clearly and simply. Sometimes, instead of leaving a question open-ended, we should provide two possible answers for him to choose from. Also, we might have to have Rob repeat things to make sure he understands, and rephrasing may be helpful for him. Some examples she said were: Rob, what did you have for lunch? Ham or a hamburger? (He had ham.) Do cats have feathers? (Rob said yes.) Do you know what feathers are, Rob? (He said yes.) What kind of animal has feathers? (He said birds.) Yes, birds have feathers. Do cats have feathers? (Rob said no.) Right. Cats do not have feathers. They have fur.
Kris had Rob do some writing, too. He's fixated on numbers! She asked me what was with numbers. I told her that he has to write a lot of numbers at work. :P
She did some questions with him and reviewed the original questions, too, trying to get him to look to his paper to find the answers. He did okay with that. He's still not completely understanding everything, but she told me that he didn't do well at all previously and has made an improvement, which is excellent.
Today, I was told he'll be provided a Memory Book. Kris is going to put together a book of answers for Rob to go to when he gets asked usual questions. She told him that it's better to have to look up the answer and get it right, than to take a guess and be wrong. Again, this is all training for me, too. Instead of just jumping in to help him with the answer, I need to patiently assist him to find the answer from another source. ;)
So, for any who are planning to visit, just keep in mind that overstimulation gets Rob really agitated. Things need to be simple. A tell-tale sign that he's getting frustrated is that he starts to bounce his leg. Either that, or he'll swear at you. :P He swore at his OT person yesterday when he got frustrated with Tic-Tac-Toe. You can't say I didn't warn you! ;)
Tuesday, August 3, 2010
Is it a GOOD thing?
Now that Sarah's been getting Rob up and walking around in Physical Therapy, he wants to get up and walk around! He unbuckled himself from his wheelchair and started walking out of the room. I hurried in front of him and told the kids to press the call button. Well, that didn't make him very happy. He yelled at me, but a nurse quickly came to the rescue. We got him to sit on his bed and settle down while she fastened a safety strap to the bed. He's in bed now, all tied in and watching, of all things, American Choppers. He's awake. Hopefully he stays awake. He has OT in 45 minutes. (He missed his morning OT because he wouldn't wake up.)
Physical Therapy
Rob's upset with me. :S He's nice to the doctors, nurses, and therapists, but he has no patience for me.
Joel got involved in Rob's morning PT session. They played pass while standing to help Rob work on balance. If Rob dropped the ball, the therapist (Sarah) had him bend down to pick it up himself. These sessions are good for all of us. My initial reaction was to grab the ball off the floor for him. His therapists are training us to encourage Rob to do tasks on his own. They do, however, teach Rob that we are helpers that can be trusted if he needs an answer or needs help with something.
He's really doing a great job in PT. He gets up and walks so well during his session that the therapist said she'll be requesting that the nurses have him walk to the bathroom from now on. For PT this afternoon, the plan is for Rob to use the exercise bike to work both his arms and legs.
I haven't had an official meeting yet, but his doctor is very optimistic that Rob will only need to be hospitalized here for some weeks, then will move to Milne, which is Gaylord's transitional living house. Rob's Case Manager will be speaking with me a little later about their plan.
I suppose I'm just going to have to grow some thick skin. Maybe he's taking everything out on me because I'm the most familiar to him right now. I'm trying not to let some of the things he says bother me, but I'm a pretty sensitive person. We're both going to have to adjust to this new chapter in our lives.
Joel got involved in Rob's morning PT session. They played pass while standing to help Rob work on balance. If Rob dropped the ball, the therapist (Sarah) had him bend down to pick it up himself. These sessions are good for all of us. My initial reaction was to grab the ball off the floor for him. His therapists are training us to encourage Rob to do tasks on his own. They do, however, teach Rob that we are helpers that can be trusted if he needs an answer or needs help with something.
He's really doing a great job in PT. He gets up and walks so well during his session that the therapist said she'll be requesting that the nurses have him walk to the bathroom from now on. For PT this afternoon, the plan is for Rob to use the exercise bike to work both his arms and legs.
I haven't had an official meeting yet, but his doctor is very optimistic that Rob will only need to be hospitalized here for some weeks, then will move to Milne, which is Gaylord's transitional living house. Rob's Case Manager will be speaking with me a little later about their plan.
I suppose I'm just going to have to grow some thick skin. Maybe he's taking everything out on me because I'm the most familiar to him right now. I'm trying not to let some of the things he says bother me, but I'm a pretty sensitive person. We're both going to have to adjust to this new chapter in our lives.
Missed OT Session 1
The kids and I are visiting Rob today. We beat rush hour traffic this morning, thank goodness. We were hoping to have breakfast together, but the kids and I had to eat without him because he's still sleeping.
The Occupational Therapist tried to wake Rob up for his morning therapy. She failed. If she gets a chance to come back, she will. Otherwise, Rob's only going to have one session of OT today.
His breakfast is getting cold and I think he only has 90 minutes before his morning PT. I haven't seen a schedule for today's activities yet. I think I heard the Physical Therapist say she'd see Rob at 10 this morning.
The treating team is supposed to have their first team meeting regarding Rob's care plan and estimated discharge date today. I will be sticking around until I get to talk with them. For now, I'm going to keep trying to wake the sleepy head.
The Occupational Therapist tried to wake Rob up for his morning therapy. She failed. If she gets a chance to come back, she will. Otherwise, Rob's only going to have one session of OT today.
His breakfast is getting cold and I think he only has 90 minutes before his morning PT. I haven't seen a schedule for today's activities yet. I think I heard the Physical Therapist say she'd see Rob at 10 this morning.
The treating team is supposed to have their first team meeting regarding Rob's care plan and estimated discharge date today. I will be sticking around until I get to talk with them. For now, I'm going to keep trying to wake the sleepy head.
Monday, August 2, 2010
Therapy
I was able to bring Rob down to the gymnasium for his OT and PT this afternoon. In between, we had an ice cream and Gatorade in the cafeteria. ;)
OT was okay. Rob was asked to put cards in order for the days of the week and the months of the year. He did a good job with that, but he got very frustrated with the seasons and asked to take a break.
PT was awesome. He was walking around, got in and out of the car, and went up and down stairs. It was great to see him doing so well. The therapist said that when his abilities increase, his PT sessions will go from twice a day to three times a day. She doesn't think it'll be long. :)
His therapy wiped him out. I brought him back to his room and before I could get help getting him to bed, he fell asleep in his chair.
One thing that's starting to happen is the colorful language I was warned about. He's been getting mad at me and definitely swearing more. :S
The therapists would like the kids and me to be actively involved in Rob's sessions. They're trying to help him realize that he can trust us for direction and assistance, and that he shouldn't feel embarrassed if he needs help from us.
I'm quite sure he's down for the count for the rest of the day. :)
OT was okay. Rob was asked to put cards in order for the days of the week and the months of the year. He did a good job with that, but he got very frustrated with the seasons and asked to take a break.
PT was awesome. He was walking around, got in and out of the car, and went up and down stairs. It was great to see him doing so well. The therapist said that when his abilities increase, his PT sessions will go from twice a day to three times a day. She doesn't think it'll be long. :)
His therapy wiped him out. I brought him back to his room and before I could get help getting him to bed, he fell asleep in his chair.
One thing that's starting to happen is the colorful language I was warned about. He's been getting mad at me and definitely swearing more. :S
The therapists would like the kids and me to be actively involved in Rob's sessions. They're trying to help him realize that he can trust us for direction and assistance, and that he shouldn't feel embarrassed if he needs help from us.
I'm quite sure he's down for the count for the rest of the day. :)
They Suck
Rob's getting around in a wheelchair today. :) It's a little scary - like chasing after a curious toddler running around in a walker. I brought him a Powerade. He guzzled the whole thing right away. Guess I should've brought more than one. I asked him if he slept well. He said no because I was bothering him. I asked him how I was bothering him, since I wasn't even here. He said, "I don't know." :P
He had PT this morning and was wrapping up Speech Therapy when Joel and I arrived. I asked him if he likes his therapists and he told me, "They suck." Haha! I asked, "Why - because they make you work hard?" He said, "Yes." :P Too funny.
By the way - he figured out how to unbuckle himself from the wheelchair. :P
He had PT this morning and was wrapping up Speech Therapy when Joel and I arrived. I asked him if he likes his therapists and he told me, "They suck." Haha! I asked, "Why - because they make you work hard?" He said, "Yes." :P Too funny.
By the way - he figured out how to unbuckle himself from the wheelchair. :P
Sunday, August 1, 2010
Caribbean Caterpillar
It's easy to tell that Rob's not feeling well today. He's not talking a whole lot, although he asked me to bring him a caribbean caterpillar the next time I come. He's extremely sleepy. The nurses couldn't get him to walk to the bathroom this morning. They were hoping he'd eat his lunch sitting in a chair, but he wouldn't cooperate. The swearing I'd been warned about takes place when he has to go to the bathroom. He wasn't interested in eating his lunch, but he's very, very thirsty. That's pretty much all he's doing today - drinking, peeing, and sleeping. He complained of a headache and stomach ache. He was given some Tylenol for that, but something's still making him quite agitated. I think I'll get back to sitting on the bed with him and watching the Discovery Channel.
Talk about rip your heart out.
I made it to Gaylord in time to have breakfast with Rob this morning. His was better than mine. I had a Nutrigrain bar. He had scrambled eggs, pancakes, oatmeal, and a banana (which he peeled himself). He's been talkative this morning. :) It just made me so sad when, after I brushed my teeth, he told me he wished he "could be exact like [me]." :( I told him that's why he's at Gaylord, an hour-and-a-half from home. He asked, "45 minutes one way?" Nope, an hour-and-a-half one way. I hope he appreciates my dedication. :P
He is complaining that he has pain in his stomach, but he ate almost all of his breakfast. I asked him if there's anything he wants to say to the people reading the blog. He said no. Sorry! :P Maybe next time.
He is complaining that he has pain in his stomach, but he ate almost all of his breakfast. I asked him if there's anything he wants to say to the people reading the blog. He said no. Sorry! :P Maybe next time.
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